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  • About Me

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    luna4

    USA
    Member since September 10

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      From mazel September 22

      Hi Go onto Dr. Weinberg's site and see before and after. The scars look like flat white bumps instead of round pea shape ones.....When the tumors come back, I just have the procedure again. Usually every two years.....Good luck to you.......Two weeks from today I will be having it done again.....

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      From mazel September 21

      Hi Sorry I haven't been on the DS in a while. I am actually having the ED procedure again in the beginning of Oct. The red scabs can last from 6-12 months depending on what part of the body you have done. The face looks like a terrible case of acne for about 2 weeks than goes back to normal. The tumors do eventually come back, but it is worth getting done since it keeps them small.........Good luck... Jude

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    • Close Neurofibromatosis

      Hi. I have NF1 as does my 3 year old daughter. Just now dealing with some of the more cosmetic issues. Have many questions and would love to connect with people.

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