Hi Everyone. Where to begin .. I'm the primary caregiver in my household. I have a wonderful husband (retired/disabled) who has been diagnosed with Behcet's, his condition is somewhat stable, but there are moments when times are very rough. I'm a mom to step-children who are young adults and trying to cope with the ups and downs of their father's Behcet's, along with my ups and downs with my depression and anxiety, and the growing pains of life. One step-child (disabled) who has his own set of disabilities, which adds more to the roller-coaster of life. The other two are doing ok -- as well as can be expected. With some of the rules and regulations of Social Security Disability, I'm pretty much home-bound to give my full attention to the family members who are on disability. Our budget is very tight, but we manage.
Hi Everyone. Where to begin .. I'm the primary caregiver in my household. I have a wonderful husband (retired/disabled) who has been diagnosed with Behcet's, his condition is somewhat stable, but there are moments when times are very rough. I'm a mom to step-children who are young adults and trying to cope with the ups and downs of their father's Behcet's, along with my ups and downs with my depression and anxiety, and the growing pains of life. One step-child (disabled) who has his own set of disabilities,
I have a broad genre of art, books, movies, and music. I'm pretty flexible when it comes to topics and interests. I do participate on a few mmorps, but consider myself a casual player at best.
I have a broad genre of art, books, movies, and music. I'm pretty flexible when it comes to topics and
Kohana gave slrow flowers 6:58pm
Just sending you some flowers to keep thing bright. I hope you are doing well. Take care, hun. *hugs*…
Kohana gave SoPaS a hug 6:43pm
Hang in there.…
Kohana updated their status 12:12pm
Every moment of waking life is precious. Once that time has passed it...…
November 2, 2009 4:32pm
Hmm .. a few set-backs, but nothing really disconcerting. The usual monthly episodes with my hubby's condition, not as severe as the …
October 15, 2009 12:16pm
After a long week and a half stint, my hubby is finally pulling out of his monthly funk. yay! \o/ It's …
Thank you, it came just in time, not feeling to good today so you put a smile on my face. Hope you are doing well. Have a blessed week :)
Thanks your hug was really needed!! Hoping that you are doing well also. Thans for thinking of me :)
miss you to were you been ?
I think chat closed randomly when we were talking... thanks for the hug and same luck goes for you, too. I hope things continue being ok for you!! :)
thankks fro adding me
Primary caregiver to loved one in chronic pain and diagnosed with Behcet's Disease/Syndrome. Also, providing support to family members with mental disabilities/disorders and illness.
Diagnosed, have had treatments to medicinally, and have had surgery.
