We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
  • About Me

    Image of becs67

    becs67

    Female, 30, Seeing Someone
    Dublin, IRL
    Member since September 6

    • About Me

      I am 30, work in the Civil Service since 2000, I have NF 1 I wasnt diganosed until I was 19, I am the first member of my family on either side to get NF

      I am 30, work in the Civil Service since 2000, I have NF 1 I wasnt diganosed until I was 19, I am the first member of my family on either side to get NF

    • Interests

      Gym, socialising and shopping with friends :)

      Gym, socialising and shopping with friends :)

  • Recent Activity

    November 16

    August 18

  • Journal

    Read Journal

  • Hugbook

    Give becs67 a hug



    • Thanks

      From CathySurvives September 30

    • Hug

      From igloogirl September 24

      Yeah, it did change after pregnancy but it seems to be quite minimal still
      i mean, i am sure people can see the bumps but i am never questioned or people never look at me weird for it...
      i do worry all the time, but what can i do really? its not like i can control it so if i worry it consumes me and i really do not want that for my life

      i would love to have another child, but even without NF the task seems daunting lol
      hope all is well and we will chat more soon

    • Hug

      From cc28 September 23

      Hi Becs, how you going? In relation to your question, I had ED surgery performed on me around 3 months ago though it was only a test patch so see if I was pleased with the results. The doctor worked on about 10 neurofibroma on my chest, and pretty happy with the results :) They did leave some scarring.. I have Asian skin so my skin scars dark & it left a few keloids but nothing too major. I much rather flat skin then the bumps! I'm going for the works late next month which I'm excited about. I've been rubbing vitamin E oil into my scars and using scar treatment gels and it looks like it's helped the scarring, but scars heal over time too, so that could be a factor as well. I would definitely recommend the treatment if you'd be willing to sacrifice scarring over bumps. After my treatment, I'm going to get a spray tan and see if it covers the scarring.. I'll give you updates for when I do :) Have you seen Dr. Weinberg's page? It has some pictures you can check out. Also check out this link.. It's pretty much a whole thread on ED together with pics of results. After seeing that it motivated me to get something done :) Hope it helps you make the right choice too..! http://ctf.org/phpBB3/viewtopic.ph...

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Nov 10, 09 17 days ago.
    Current Weight (KGs)
    56.5
  • Support Groups

    becs67 hasn’t joined any support groups yet.
  • Friends


Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil