Why I Regret Having RAI
September 27, 2009 11:06pm
I had a terrible experience with RAI and I'm still suffering from having done it. I would never recommend that anyone have that procedure. In …
Danak127
11:54pm, November 8, 2009
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About Me
Danak127
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About Me
Divorced, 3 grown sons, Computer Technician... Diagnosed with Graves Disease October 2008, had RAI in February 2009 which triggered Graves Ophthalmopathy in April 2009.
Divorced, 3 grown sons, Computer Technician... Diagnosed with Graves Disease October 2008, had RAI in February 2009 which triggered Graves Ophthalmopathy in April 2009.
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Journal
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Moment of Peace
change your words and do not let this disease win. i wanna be your friend and help u fight this. ok have a great week. feel better
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Rainbow
how are u
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Thanks! Take care.
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wow. I was just recently diagnosed with Graves and started PTU. My endo said i would be on it for 2 to 3 months then get RAI. So, far, I haven't seen much greatness to going that route. I wish you the best and just remember "there is light at the end of the tunnel".
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Hi, Dana, My situation is nearly identical to yours. I'm 48, was diagosed with Graves last fall and with TED early in '09. Your photo is the first that I have seen that looks like what I've experienced with the severe puffiness above and below the eyes. I have found, as others have said, that things do improve with time. Best wishes from the other side of the country.
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Close Graves' Disease
Diagnosed with Graves Disease - October 2008, Had RAI - February 2009 which triggered Graves Opthalmopathy in April 2009. Taking Prednisone for GO; moon face, gained 40 pounds, hair falling out, rashes, leg cramps, etc,
Treatments
- Methimazole Working / Worked
- This worked great to lower my thyroid levels, HOWEVER, it lowered my white blood cell count to almost nothing so I could not continue with this medication.
- Radioactive Iodine Not Working
- Having RAI was the WORST decision I have ever made. My health has completely fallen apart since I had this done. It triggered the onset of GO for me and now I'm on Prednisone with all its horrible side effects and I can't get off of it.
