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  • About Me

    Image of Doaner

    Doaner

    Female, 45
    VA, USA
    Member since September 4

    • About Me

      marketing director by profession. I have sarcoidosis in my lungs and skin. Been on prednisone for a year then off 6 months, then on another year with methotrexate. I have degenerative discs in my back, unstable sacro-iliac joint, sciatica, low thyroid, TMJ and now cataracts from the prednisone.

      marketing director by profession. I have sarcoidosis in my lungs and skin. Been on prednisone for a year then off 6 months, then on another year with methotrexate. I have degenerative discs in my back, unstable sacro-iliac joint, sciatica, low thyroid, TMJ and now cataracts from the prednisone.

    • Interests

      into ska music, cooking, boating, reading, photography, old movies, TCM, Hitchcocks.

      into ska music, cooking, boating, reading, photography, old movies, TCM, Hitchcocks.

  • Recent Activity

    Yesterday

    May 14

  • Journal

    • gluten-free diet helps

      Mood October 1, 2009 8:35pm

      I've had joint pain in my knees, hips and low back for 30 years, since I was 15.  At first it was attributed to growing pains (I grew tall …

    • Starting on the sarcoid roller coaster

      Mood September 6, 2009 1:31pm

      About two years ago, after my birthday in May, I developed a rash on my chin.  At first I thought it was a strange bout of acne.  I usually …

    Read Journal

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  • Support Groups

    • Close Sarcoidosis

      I have sarcoidosis in my lungs and skin and have been on prednisone and methotrexate off and on for two years. Prednisone gave me cataracts, etc. Typical sarc stuff!

      Treatments

      Methotrexate Working / Worked
      made me very sick to my stomach.
      Prednisone Working / Worked
      works while I'm on it, but it comes back in my lungs right away, and worse. Gained around 60 pounds, knocked out thyroid, got cataracts in both eyes.
      Gluten Free Diet Working / Worked
      helps a lot with joint pain! Better energy clearer thinking and weight loss.
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