Lyrics: Grey Daze - Sometimes
September 7, 2009 2:27pm
Content Advisory: None
Notes: None
Sometimes, things just seem to fall apart When you least expect them to Sometimes, you want to pack …
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elcisitiak 
9:13pm, September 8, 2009
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About Me
elcisitiak
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About Me
I'm Kaiti, I have no desire for anonymity and it's not my first name anyway =] I'm 19 (not for long)... I have myasthenia gravis and fibromyalgia syndrome, neither of which are any fun at all (although having people "steal" you when you're in a wheelchair can be fun...if it's done right)... I'm also bipolar and have panic attacks/anxiety disorder, and Asperger's syndrome. Only, the last one isn't really a problem. No, really, it's awesome =] Um, I'm friendly and don't bite hard, so you should talk to me. Yay!
I'm Kaiti, I have no desire for anonymity and it's not my first name anyway =] I'm 19 (not for long)... I have myasthenia gravis and fibromyalgia syndrome, neither of which are any fun at all (although having people "steal" you when you're in a wheelchair can be fun...if it's done right)... I'm also bipolar and have panic attacks/anxiety disorder, and Asperger's syndrome. Only, the last one isn't really a problem. No, really, it's awesome =] Um, I'm friendly and don't bite hard, so you should talk
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Interests
music, books, linux, general geekery, the hitchhiker's guide to the galaxy, heinlein, harry potter, animorphs, super mario, metallica, guitar hero, people, langauges
music, books, linux, general geekery, the hitchhiker's guide to the galaxy, heinlein, harry potter, animorphs,
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Recent Activity
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Journal
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Lyrics: The Echoing Green - Yesterday's Taking Over
September 5, 2009 1:17am
Content Advisory: None!
Notes: Joey Belville is a devout Christian (which I am anything but), and it shows through in his lyrics. Not as …
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Lyrics: Metallica - The Unforgiven (I, II, & III)
September 4, 2009 10:58am
Content Warning: Part II might be interpreted as murder, so if you're über-sensitive you might not want to read it? I don't know. …
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Music
September 4, 2009 10:12am
I, Kaiti, intend to actually keep up with this journal.
Intentions, I know, are insignificant. However! It is my intention, and as of this …
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Photos
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Goals
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Support Groups
Close Bipolar Disorder
It's...treated, I guess you could say, mostly, but I strongly dislike being on medications, especially psychiatric ones, so I'm still actively looking for alternatives. I just... haven't found one yet. Any suggestions? I still have swings, just not... as dramatic.
Treatments
- Lamictal Working / Worked
- I guess it's working, so to speak, but it's a medication. Therefore I don't like it. I don't know about side effects because my life was flipped upside down shortly after the dose was increased to a therapeutic level and I've been having all sorts of fun issues so it's hard to say what's what =[
- Meditation Somewhat Helpful
- Its so hard to sit still and I cant really tolerate a whole lot of quiet but this is the only way I can really get to sleep at night or what passes for night in my world anyway!
- Positive Thinking Somewhat Helpful
- A little bit. Not very. Ive developed some pretty advanced negative feedback circuits so its very difficult to think anything positive seriously.
Close Myasthenia Gravis
It asks why I'm here. I think it's fairly clear why I'm here =] I have MG! (Isn't that magnesium?) I'm 19 and I've been dealing with it since I was 7 and it took 'em 11 years to figure out what it was! And now they're questioning it again, which is silly, since the treatments help. But they don't help enough.
Treatments
- Mestinon Working / Worked
- Well, I can make it through most days now! Still not even close to being able to hold a job or anything, but I might be able to do some school now. I hope. The side effects are annoying, with the GI problems and all, but I can walk! I can even RUN! For the first time - ever! Yay!
- Thymectomy Considering
Open Anxiety
I have such a hard time with people! I guess that's explainable by the autism thing, but after years and years of negative responses from everything I do with people, I'm terrified to approach them anymore. I can sing on stage, but I can't approach someone new. Also I get terrible panic attacks randomly, and invariably at the most inconvenient times! I have strange phobias and general anxiety all the time. It's so frustrating!
Treatments
- Breathing Exercises Somewhat Helpful
- It's the closest thing I have to something that works. But honestly, when you're convinced that you're dying or about to receive terrible news, it's hard to focus on your breathing. So I don't know what to do!
- Meditation Somewhat Helpful
- Whenever I manage the breathing exercises, I always follow it with mediation. The problem is, I can't seem to break a panic attack cycle to get to that point! So frustrating...
Open Asperger Syndrome
I'm about as aspie as they come! But it's awesome... I'm more here to help but I guess it's cool to talk to people like you. I don't really consider it a disorder so to speak, so I refuse all treatment because I -like- me. The most frustrating thing is the insane obsessions that I have, not because I don't enjoy them, but I get laughed at a lot and I can't seem to keep from talking about them, practically constantly! Which annoys people.
Open Fibromyalgia
Okay, this one's really frustrating. Doctors don't take me seriously, everyone accuses me of drug-seeking, other people don't understand - wow I sound whiny! It's just, the meds make it vaguely tolerable, but it's still, well, fairly miserable. =[
Treatments
- Cyclobenzaprine Working / Worked
- Had it for about two weeks, but apparently the doctor found it concerning that the side effect was a complete inability to walk. Really, I didn't mind, I'd rather not be able to walk and not be in PAIN all the time! I wish the doctors would see it my way as well...
- Lyrica Considering
- Vitamin B12 Not Working
- It's good for giving one energy, but not so much for pain relief =[
Open Diets & Weight Maintenance
Oh, and on top of everything else, I still have fifty pounds to lose! But I can't seem to. No matter -what- I do.
Treatments
- Counting Calories Somewhat Helpful
- I stopped bothering to count calories when I realized it was becoming more of a challenge to eat over 1200 calories like I'm supposed to than it was to eat under 1400. I still don't think I do.
- Eating Healthier Foods Somewhat Helpful
- No high-fructose corn syrup (ew). No artificial sweeteners (double-ew - but that cuts out all possible prefab food programs!). No trans fats (ew doesn't even begin to cover it).
- Eat Less Somewhat Helpful
- I got so used to eating "less" that now I doubt that I eat "enough".
- Physical Exercise Somewhat Helpful
- Really tough with all the physical stuff I'm dealing with but I do what I can whenever I can.
Open Healthy Eating
I'm kinda sorta completely dirt poor, so it's really hard to get decent food. I eat organic whenever possible, I avoid all artificial sweeteners like the plague, I avoid as much trans fat as possible without going vegetarian, I avoid high-fructose corn syrup like I avoid Microsoft products, and I try to eat as many vegetables as possible. It's hard though. Especially since I'm the only one in the household who follows any of that.
Open Coming Out
I've done it and wanna help others do it too! Yay! ^_^
Open Bisexuality
Why not?
