Journal Entry for November 2, 2009
November 2, 2009 8:24pm
Its been a while since I've been on. I'm on all these new meds and I'm still adjusting to them. Today I'd say was the …
sluong22
4:10pm, October 8, 2009
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About Me
sluong22
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About Me
I was diagnosed with Polymyositis [autoimmune disease] 19 years ago and Fibromyalgia and Arthritis 12 years ago. Over the years the severity of my symptoms have worsened and it's become a daily struggle to deal with, physically and mentally. I now more than ever need people to talk to that can actually relate, and not just an empathetic ear. I'm currently unemployed, focusing on taking care of myself, my boyfriend, and our dog Wally. I fill my days with reading, reconnecting with the world through the internet, trips to the dog park when I'm well enough, and lots and lots of rest. My goal is to train if not Wally, then our next dog to be a therapy dog. I'd like to get to know others with fibro, share stories, make friends, and maybe even find a dog park buddy to get out of the house with! =]
I was diagnosed with Polymyositis [autoimmune disease] 19 years ago and Fibromyalgia and Arthritis 12 years ago. Over the years the severity of my symptoms have worsened and it's become a daily struggle to deal with, physically and mentally. I now more than ever need people to talk to that can actually relate, and not just an empathetic ear. I'm currently unemployed, focusing on taking care of myself, my boyfriend, and our dog Wally. I fill my days with reading, reconnecting with the world through
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Interests
Anything and everything there is to see and taste =]
Anything and everything there is to see and taste =]
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Journal
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quick update
October 28, 2009 3:41pm
quick update. its been a while since i've been on the computer but just wanted everyone to know i'm okay. body is adjusting to …
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Better day
October 2, 2009 11:33am
Yesterday was rough...I wasnt feeling well and the arguement with my mom tore me apart. I can't and never will understand (ill just blame …
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Journal Entry for September 30, 2009
September 30, 2009 12:08pm
today is probably one of the worst feeling days I've had in a while...its totally putting me in a mindset I dont want to be in so I'm going …
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actually getting stuff done
September 23, 2009 6:29pm
I woke up this morning feeling halfway decent! =D I'm definitely feeling a little lethargic from the heat, but the main thing is that I …
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Hugbook
Hug
Hope you are feeling better! HUGS from down south :)
Hug
I agree with Dragon Lady, it will get better. You have a lot of fight in you, and that's more than half the battle! And a battle it is, but just know that you are not alone!
Hug
thxs for message. hope your well. thxs.
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Hug
read your journal. well written. hope your well
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Sympathy
well my mom doesn't want me to get my motorcycle back. riding helps my bipolar so much. i should see her fri. kinda of dread it. when i go to put money on bike she will complain. and i need transportation. well hang in there. i'm watching Twighlight again.
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Photos
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Support Groups
Close Fibromyalgia
I'm 26 years old and have dealt with Polymyositis, Fibromyalgia, and Arthritis for a majority of my life. Over the years the severity of my symptoms have worsened and it's become a daily struggle to deal with, physically, mentally, and especially emotionally. I now more than ever need people to talk to that can actually relate, and not just an empathetic ear.
Treatments
- Acupuncture Somewhat Helpful
- It helped with the knots and tension, but I always ended up with a migraine afterwards
- Heat Working / Worked
- helps with the loosening of knots and reduces muscular contractures
- Lyrica Not Working
- I HATED the way this made me feel. I was even more lethargic than I already am, I developed the trembles and my vision became very blurry at time [not so safe when you're driving]
- Morphine Somewhat Helpful
- I was only given this in the hospital. It was great for the pain, but I was also very out of it.
- Neurontin Not Working
- this made me nauseous all the time
- Ultram Not Working
- it just wasn't strong enough even with dosages increased.
Close Polymyositis & Dermatomyositis
I'm 26 and was diagnosed with Polymyositis at age 7 and Fibromyalgia and Arthritis at 14. I've tried almost every medication and treatment out there. I have pernament muscle damage and weakness and currently live with the debilitating effects of Fibromyalgia on a day to day basis. I'm at an age in my ife where I need more than ever people to relate to.
Treatments
- Azathioprine Not Working
- Methotrexate Not Working
- Physical Therapy Working / Worked
- Humira Not Working
Open Depression
sluong22 hasn’t entered any details for this support group.Open Sexual Abuse
so I have people to talk to about this...
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Groups
