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About Me
onyxangel
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1 hug received
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Hugbook
Hug
Just wanted to see how you are doing--hanging in there! I guess somedays that's all we can do with the EDS is hang in there! Just know I'm thinking of you and that myself and others are here if you need anything! Hope you are doing okay! HUGS!!! =)
Hug
Hey! How's everything going? I just got on here for a little bit and thought I'd say hi real quick and see how you're doing. Hope things are going okay. HUGS!!!! =)
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Thanks for the hug! I'm sorry about everything going on between you and your boyfriend with all the EDS stuff! That's hard...EDS can be such a hard thing and throw a wrench things sometimes! I'm always here if ya need or someone to talk to about stuff! I know that having others to talk to on here--other people who have EDS and can understand--has helped me through things. I hope that things are going well for you otherwise! Good luck with everything! HUGS!!! =) --Jackie
Good Luck
Good luck with everything...I am 14 and I have just been diagnosed with EDS but I have already told my mom that i dont wanna have my own kids because i wouldnt wish this on my worst enemy...Good luck and Best wishes to you...Sarah
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Support Groups
Close Ehlers-Danlos Syndrome
I have EDS type 3 and I thought I may meet others who share my problem . I hope to get advice and new ideas to help me live my life .
Close Hypermobile Syndrome
I have been diagnosed with the hypermobility type of EDS . Just here for support and new pain management ideas
Open Chronic Pain
I have EDS type 3 as a result of that I am constantly in pain . I am looking for support and ideas to help get me through the day
Treatments
- Chiropractic Adjustment Working / Worked
- Cymbalta Working / Worked
- Heat Working / Worked
- Physical Therapy Working / Worked
Open Body Modification
I am a big fan of body mod's






