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About Me
puglover42
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About Me
When I was 15 I had a bad bout with Mononucleosis. I was never the same after that. Then after having 2 children, the symptom's just got worse. At age 27, I was finally diagnosed with MG. Then in March of 2008, I was diagnosed with Connective Tissue disease. In 2004, my big brother died of complication's due to Crohn's Disease. This too, I later learned, is a connective tissue disease. Obviously, we both inherited this. I'm here just to learn more and to associate with others :)
When I was 15 I had a bad bout with Mononucleosis. I was never the same after that. Then after having 2 children, the symptom's just got worse. At age 27, I was finally diagnosed with MG. Then in March of 2008, I was diagnosed with Connective Tissue disease. In 2004, my big brother died of complication's due to Crohn's Disease. This too, I later learned, is a connective tissue disease. Obviously, we both inherited this. I'm here just to learn more and to associate with others :)
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Website
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Interests
My Kids and Grandbabies; Working, Reading Really Good Books, and I'm a fanatical housekeeper
My Kids and Grandbabies; Working, Reading Really Good Books, and I'm a fanatical housekeeper
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Recent Activity
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Journal
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Hugbook
Shout Out
its been a while and just wanted to say hi and you and michelle. its been a tough few days for me so I havent really been on, but let me know how the both of you are doing. Thinking of you two!
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Little Love
Please send my get well wishes to Michelle! I'm so sorry to hear she isn't feeling well enough for the comp. The screen can definitely be too much on the eyes sometimes, plus the typing if her joints are aching at all. I don't know if she's ever up for a phone call, but if so I'd love to say hi to her. If either of you are ever up for a chat, I'm here for you two. Take care and lots of hugs
Hug
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Celebration
its the weekend! have a great one and tell michelle hello!
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Hug
I just read the spoon theory and it had me in tears! Its everything I wish I could articulate but couldn't! I needed that, thanks! Copies will definitely be kept on hand...
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Photos
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Support Groups
Close Myasthenia Gravis
Actually, I've had Myasthenia Gravis for many years...I was also diagnosed, last year, with Lupus. In reality, it's really Mixed connective tissue disease. I am hoping to find someone with the same issues
Treatments
- Mestinon Working / Worked
- Thymectomy Working / Worked
- The thymectomy was very successful, but it only lessened the symptoms
Close Lupus
I was diagnosed in 1987 with Myasthenia Gravis and in Mar. of 2008, I was also diagnosed with Lupus
Treatments
- Plaquenil Working / Worked
- Plaquenil is a really good preventative
- Prednisone Working / Worked
- It works, i just don't like it. I only use it if I have to.
- Relafen Working / Worked
- Im not sure about the Relafen
