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About Me
kelliejhau
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About Me
I am a Chiarian and a Mother to 2 chiarians. We also have related conditions such as Ehlers Danlos, POTS, PTC, hydrocephalus, and the list goes on.
I am a Chiarian and a Mother to 2 chiarians. We also have related conditions such as Ehlers Danlos, POTS, PTC, hydrocephalus, and the list goes on.
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Recent Activity
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Journal
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Hugbook
Hug
So pleased to hear you are home safe and sound and your son has the surgery behind him. Now the difficult part for you both, right? You sound very strong despite what I know you are going though in your heart and body...way to go momma! I am thinking about you, send update when you have time. Mary
Hug
Have you tried the Cleveland Clinic yet? Dr. Di operated on my Mom when no one else would have touched her. Sending prayers your way.
I’m With You
I am with you in spirit, write if you need to vent or for any old reason.
Thanks
Thanks for the hug and it's nice to meet someone close here. I'd love to chat. My email is spotangel1966@msn.com. I'm trying better now to keep in touch now that things have calmed down a bit.
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Photos
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Support Groups
Close Depression
kelliejhau hasn’t entered any details for this support group.Close Arnold-Chiari Malformation
I am a chiarian and a mother to 2 with chiari.





