solarbabiesmommie

About Me

I am making this site for my son. We are trying to find other that we can chat with and everything. I am needing a support group. I have no one that understands what Im going through. My son is 20 months old now. But when he was 4 months old he was diagnosed with Solar Urticaria and alot of other things. I have yet found anyone else. Let me rephrase that. I found one person where we live at that has it as well. We talked for awhile and then for some reason I have not heard from them anymore. So I am looking elsewhere for support. Everytime my son gets exposed to lights and to the sun he breaks out in hives and in blisters. He also has JRA, a sensory intergration disorder, and alot of other stuff. He's had a skin test done and the only thing that showed positive was TREE's. every tree you can imagine he is allergic too. But everything else was Neg. But when he is exposed to it he show's signs. So we have to be careful with what he's all around. He's been hospitalize 3 times since he's been born. He's stopped growing and gaining weight.

I am making this site for my son. We are trying to find other that we can chat with and everything. I am needing a support group. I have no one that understands what Im going through. My son is 20 months old now. But when he was 4 months old he was diagnosed with Solar Urticaria and alot of other things. I have yet found anyone else. Let me rephrase that. I found one person where we live at that has it as well. We talked for awhile and then for some reason I have not heard from them anymore. So I