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  • About Me

    Image of Woodlawn

    Woodlawn

    Female, 48
    USA
    Member since August 6

    • About Me

      Diagnosed w/ PKD at 14. Tested every few months. Almost @ dialysis as of summer 09 but not quite there. Currently working as secretary. Volunteer w/ animal rescue group. Many pets (cats, fish, a horse).

      Diagnosed w/ PKD at 14. Tested every few months. Almost @ dialysis as of summer 09 but not quite there. Currently working as secretary. Volunteer w/ animal rescue group. Many pets (cats, fish, a horse).

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    • Good Luck

      From Alinds August 21

      Hi Woodlawn...yes it sounds like we have lots in common! I am sorry that you are going through this but I look forward to comparing notes and helping each other through all this. Have you looked into donation yet? Or gotten on the list? If you are end of stage 4 you should be able to get on it now even though you are not ondialysis...I got on the list when my GFR was 19. It looks promising that I will have a live donor. I'd be happy to tlak to you about how I went sbout finding one if you are interested.
      Best of luck and keep postive!

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  • Support Groups

    • Close Polycystic Kidney Disease (PKD)

      I'm anxious that I will be told it's time for dialysis @ my next dr app't. Diagnosed as teenager, now in late 40s. Currently only on BP med, statin, calcium supp, & sodium bicarb. Waiting for the other shoe to drop.... worried about ability to continue working (& correspondingly, to keep insurance).

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