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  • About Me

    Image of bone44

    bone44

    Male, 44, Single
    london, LIN, GBR
    Member since August 4

    • About Me

      diagnosed with narcolepsy injune 98 though im sure i have had symptons since i was about 14. after i was diagnosed i thought ok now i know whats wrong and ive got medication life will be easier. how wrong i was

      diagnosed with narcolepsy injune 98 though im sure i have had symptons since i was about 14. after i was diagnosed i thought ok now i know whats wrong and ive got medication life will be easier. how wrong i was

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  • Support Groups

    • Close Narcolepsy

      Since my early teens i have suffered with excessive daytime sleepiness, dispite talking to various GPs about this,and other signature symptons, no one took my concerns seriously. A series of events led to me being referred to the sleep disturbance clinic at papworth hospital in 1998, where narcolepsy was diagnosed.

      Treatments

      Provigil Working / Worked
      yes. it helps to control the tiredness. because of the dramatic improvement in my condition since taking the drugs, im not to sure if i do suffer side effects
      Anafranil Working / Worked
      the cataplexy is largely kept at bay.
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