Wow what i past few years. I don't remember a day where i am not pain. This is unbelievable. I can't do much of anything without the urge to cry but, i keep on going. I have to for my son. I don't want him to see me like this. I don't sleep much, i'm trying to go to college, which is very hard due to the walking, doctors appointment and the stress of whatever disease i have. I have been poked and prodded more times than i count. This battle has been going for over 2 years. Before that, i used to think it was normal to be in so much pain. Everyone thought i was faking it and didn't believe me. I am so tired of this pain... i wish the medicine would work.
I just had a muscle biopsy done a few weeks ago, i am waiting for the answers. I hope it shows something useful. After so many test and no answers... you start getting used it. I have one or two more weeks left. I dont know how many more test they will need to run before they give me an answer.
I think right now my biggest fear is the inevitable... by the way the weakness in my legs are going, i will be in a wheelchair. I am afriad i will won't be able to walk down the aisle or have any more kids. I was a high risk pregnancy the first time... now with the new developments... who knows what will happen....
L





