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KRye
Female, 46, TX
"Best medicine a day with my grandchildren,my heart overflows with love as I rest on my heating pad..."
5:50pm, October 4, 2009

  • About Me

    Image of KRye

    KRye

    Female, 46
    TX, USA
    Member since July 29

    • About Me

      I love life, my family and God for he has provided us with. I have Arnold Chiari Malformation

      I love life, my family and God for he has provided us with. I have Arnold Chiari Malformation

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.

  • Journal

    • Wait till it worsens

      Mood September 28, 2009 10:20am

      I am frustrated.  I wasted my time on a neurologist. After I had been advised to not waste my time or money by my DS friends.....I did it …

    • No luck from a nerologist

      Mood September 25, 2009 9:05am

      well....waiting for three weeks, driving me crazy got the money, the doc took it with not much said but....... we all have our ups and downs, this …

    • This entry is private

    • This entry is private

    Read Journal

  • Hugbook

    Give KRye a hug



    • Rainbow

      From CANTLOL November 2

      Hi, how are you doing? Hope your feeling better.

    • Shout Out

      From Becky76 October 19

    • Hug

      From CANTLOL October 7

      Thanks for your prayers. It has been 3 weeks and I am just now able to go upstairs to the computer, plus don't feel I can hold up my head long enough to type much. It has wore me out just trying to catch up. Sorry you had such a bad expererience with the neurologist. I have never found one to be of much help. Will check back with you later. Hang in there!

    • Hug

      From aremerald September 18

      hello, thanks for the friend invite. I'm sorry to hear your in such pain today. My prayers are with you.

    • Hug

      From AngieLadyD September 15

      Hang in there, I understand your pain!

    Read Hugbook

  • Photos

  • Goals

  • Support Groups

    • Close Arnold-Chiari Malformation

      ACM surgery in 1991, I was unable to walk or use my right arm, hand. Surgery relieved my symptoms. I was told I have a shunt for spinal fluid to flow, can not find it now in MRI uneducated on ACM Even now not aware all I am feeling is because some big words.This after a few blows to the head after coming off my horse I have had similar symptoms for two years. Now found out my craniotomy is fine, but my cyrinix is c2-c7 and my brain is enlarged and holding fluid. I am scared to death.

    • Close Hydrocephalus

      Help understand what is happening in my head

      Treatments

      Shunts Working / Worked
      not sure, I am told there is not a shunt.

    • Open Syringomyelia

      Support and advice

  • Friends

    See all friends


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