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meriel 
and we are doing ok. We're still waiting to hear from Leeds about D being accepted onto a trial there - in fact we had a call this afternoon (having called several times ourselves last week) to say "Oh, they didn't receive the letter, we're just doing another one now"...a bit of a comedy of errors this is turning out to be....not too much funny about it though.We wait...
However! We are not downhearted...I was worrying, thinking that D had been off the Sutent for 4 weeks now, without anything happening, but then reminded myself that, as it wasn't working anyway, technically he's had no medical treatment at all. And yet, and yet.....if we look back to August, he's just doing so much better now than he was then.This could be down to so many things - his faith, the counselling, the homeopathy, the lifestyle changes, the love....who knows... He's been reading a book "Love, Medicine, and Miracles" by Bernie Siegel, which has given him (and me) a lot of strength and hope over the past 10 days.
and I went back to work this morning! Quite a shock to the system, having to iron something, instead of throwing on some jeans, and having to set the alarm clock too. Mixed feelings - quite nice, I think, to exist for a few hours outside this little cancer bubble that we seem to live in a lot of the time. But strange too, as I don't think we've been apart for more than a couple of hours since the diagnosis. I have been smothering...His mobility is a bit better at the moment, and he can stand for a short time in the kitchen to get breakfast etc, so it's easier to leave him. Still felt a bit horrible though! So I'm just going to do mornings for a while, and see how it goes.
Now we're in November....how did that happen? lots of love to all you out there, and hoping for a month full of light for you and your loved ones.
Comments
Dear Meriel,
Thanks for the update as I've been thinking about you and D. I am sorry you have to wait (particularly for blundering reasons), but that experience is not unique to your medical facilities. We've come across a lot of wonderful healthcare providers, but also some people that shame the profession. The good news is that we've always gotten through the calamities and I know D and you will as well. I think a positive, spiritual mind is the greatest medicine of all anyway and it sounds like D is receiving good doses of that each day.
I will continue to send my thoughts and prayers your way.
Love,
Linda
LSMS
Dearest Meriel - thank you for the update. You and D have been on my mind a lot. The waiting is crazy - we had to wait five weeks for our pre-Op appointment at Johns Hopkins just to set up surgery. I know this is the best kidney hospital in the country and we have one of the most amazing surgeons. . .its the endless waiting that kills me. I'm so glad to hear D continues to be such an optimist and is doing better. He sounds like an amazing person and he has such love and support from you!
Going back to work is weird, isn't it? The first day back for me was fuzzy but I've gotten back into the swing of it. Work is down time for my brain - and I think the distraction is good although any time I spend away from Art makes me anxious too. It's hard not to be like velcro right now. I know what you mean.
Love to you both - Carol
Dragonstar55
Hello Meriel,
I can only imagine how hard it was to leave D this morning. He will probably surprise you and do very well alone. Remember....you're only a phonecall away!
Please remember that Ray was only on Sutent 14 days, and has been on nothing since July 10th. I understand that you are worried....but God is taking care of D, just like he is Ray.
I love the sound of that book. Will look for it on my next trip to a bookstore. How did you find out about it?
How frustrating that you all are getting such a "run around". I continue to pray that the clinical trial will be approved for D SOON!
Hang in there, darlin. We're all in this together.
My love,
Ingrid
msgrace