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• 

  Rainbow

  From LSMS Saturday

  Dear Meriel,
  
  I do write a mouthful sometimes...but the most important thing is that D is there with you and you both still have lot of doors to knock on for help. The ups and downs are a nasty part of this ride we are all on. But, we are all in this together and if there is anything I can ever do to help, I would surely try. Hang in there Meriel. You are a very special person and I know D is so fortunate to have you and your support.
  
  Love to you,
  
  Linda

• 

  Hug

  From LoneWolfe November 17

  Hi!! Thank you forthe kind words. I always hope yu are doing well and think of all you wonderful people here.I know folks get busy inthe fight and just life in general! I had a good day today and am always blessed so that's the best part! Love, Hunter

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  I’m With You

  From LSMS November 16

  Hi Meriel,
  
  It is always a joy for me to read your messages. I think you are a very bright and loving person. Something struck me in your last message, when you said "...what the doctors here cannot bring themselves to say is possible." If you should come across a doctor who may not "know" about how to help a patient with mRCC, but who may be open-minded, there are lots of excellent cancer centers in America that could give that doctor information that may start them thinking. In California, the "City of Hope" is an outstanding hospital and cancer treatment facility that I visited as part of my role in my last job. Even our cancer hospital, Providence Cancer Center, has some the the most advanced treatments that exist. For example, there are only 17 places in America that currently have new technology that can actually safely zap tumors in the brain. I can't explain how it works, but this is important to know because some mRCC patients get tumors in the brain . I'd be happy to give you contact information for these two centers or other famous centers in America. I remember in 2004, when my husband was in the hospital receiving what was then the only hopeful treatment approved by our Federal Drug Administration. It also was the only drug known to result in a cure...unfortunately, it only helps about 4% of patients who receive the treatment, and my husband wasn't one of them. The treatment, Interleukin 2, is extremely toxic and, so it must be adminstered with the patient in the hospital. A staff of trained medical professionals watch over the patients 24/7....which is why they can only treat 3 or 4 patients at a time. While my husband was there, he was asked if he'd be willing to talk to some doctors who were visiting from around the world to learn about this treatment. He said yes, and we had a room full of doctors come in who asked lots of questions about this treatment and side effects. Anyway, this is something that you can keep in mind. I would be more than happy to research all the cancer centers in America for you.
  
  Take care Meriel. You and D continue to be in my thoughts and prayers.
  
  Love,
  Linda

• 

  Chocolate

  From LSMS November 14

  Hi Meriel,
  
  I'm sending a bit of chocolate though I would love to send some pumpkin pie!
  
  I am feeling quite blessed and thankful right now, although I've learned over the years of watching my husband fight cancer, that we should celebrate each day not just milestones.
  
  I think you and D are doing just that by living your lives to the fullest and by fighting as hard as you can to seek out the care D needs. You may not have a Thanksgiving Day in your country (or do you?), but, like us, I'm sure you feel you have much to be thankful for....so let's take a moment to celebrate with our pretend chocolate!
  
  Thinking of you...
  Linda
  
  Let's all

• 

  I’m With You

  From Beccaanne November 13

  Good morning Meriel,
  thats such wouderful news. the McMillian nurse helped you so much, especially getting the referral straight to Dr Urwin's, you definatly should hear news soon... Actually this is sometimes the only way things have to get done and i did the same when Tim was d/x getting him an app with urologist at Lahey Clinic... The only app they would give me was 8 weeks away but by pestering the office and them talking to Dr. Sorcini, he was in the next day.... Keep doing what your doing Meriiel....
  Tim and i are are doing better his wbc is down to close to the high side of normal, Tim saw a different oncologist Tuesday, and they never gave hin an ordeer for his treaatment on Monday, so i am dealing with the office now....
  We are ok, amd Tim's ct scan will be next week and his chest exray showed his mass in the lung is still The same, so i'm not to worried about the scan...
  Keep intouch on how D is doing, and yourself to ok ??
  Love,
  Becca
  
  

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