Word Vomit
September 8, 2009 7:10pm
So this may spew in every direction as my mind is all over the place hence "word Vomit"
I am recapping my life back in …
AmyTx
4:03am, July 26, 2009
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About Me
AmyTx
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About Me
I have Lupus and my 4 year old son has Hyper IGE (job syndrome) and left spastic hemiplegia cerebral palsy and he was born with a chromosomal abnormality , hypohidrotic ectodermal dysplasia. my Son also has numerous brain white matter lesions
I have Lupus and my 4 year old son has Hyper IGE (job syndrome) and left spastic hemiplegia cerebral palsy and he was born with a chromosomal abnormality , hypohidrotic ectodermal dysplasia. my Son also has numerous brain white matter lesions
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Recent Activity
November 13
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AmyTx wrote a discussion post in the Lupus support group: blood pressure 12:21pm
hi again...my blood pressure is still chaotic and i was in the emergency room the other night for flank…
November 3
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AmyTx wrote a discussion post in the Lupus support group: biopsy is in 2:02pm
I wish i had better news but i dont.. my stage II went to stage III and IV..so i start cellcept in 2…
September 14
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AmyTx turned 38 12:00am
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Journal
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Hugbook
Hug
My thoughts and prayers are with you. Hope all turns out well.
Hug
Random HUG! just because
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Flower
sending BIG HUGS & warm wishes your way....I hope you had a good weekend
Get Well Soon!
Hang in there honey! it will all work out, don't let those fancy medical terms get the best of you! Hugs, Melissa
Hug
I applaud u, I have the same rash on my chest, neck and face. I have the daily malar glow. I admire you, so bold and real. U r a Blessing as you inspire others, Im here 4 u.
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Photos
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Support Groups
Close MRSA
Son has Hyper IGE
Treatments
- Bactrim DS Working / Worked
- Hes been on it for 5 months now to control chronic mrsa
- Washing Working / Worked
- Bleach baths once a week
Close Lupus
I have severe SLE
Treatments
- Azathioprine Not Working
- never worked for me dropped my wbc's
- Cellcept Working / Worked
- it worked to put me in remission but i am no longer on it
- Methotrexate Not Working
- never worked for me
- Plaquenil Working / Worked
- its my wonder drug
- Prednisone Working / Worked
- working but has terrible side effects
Open Cerebral Palsy
my son has left spastic hemiplegia cerebral palsy
Open Multiple Sclerosis (MS)
possible MS in my 4 year old son
Open Ectodermal Dysplasia
son has numerous ailments..Hypohidrotic ectodermal dysplasia
