MissMaybebaby

Close Interstitial Cystitis (IC)

I have IC and have been seeking out groups to find other people who have IC as well

Treatments

Baking Soda Somewhat Helpful

If I am hurting really bad this can take the edge off sometimes... about 50/50. In no way does it stop it all together or work most times.

Bladder Instillation Not Working

This was the worst treatment in the world... I felt like I had razor blades in my bladder for days and had to take vicodin for the pain.

Elmiron Working / Worked

Yes, I would say it is about 75% effective and would be 100% if I followed a strict IC friendly diet

Pyridium Working / Worked

Masks the pain but no longer works as I have become immune to it and Prosed

Heat Somewhat Helpful

Helps... just calms me down when I am in a flare

Valium Not Working

Helped me sleep and forget the pain but did not do anything for it

Dietary Modification Working / Worked

an ic friendly diet coupled with elmiron and oxycontin is the cocktail that works for me

Oxycodone Working / Worked

an ic friendly diet coupled with elmiron and oxycontin is the cocktail that works for me