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  • About Me

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    FrigidBrigid

    USA
    Member since July 23

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  • Support Groups

    • Close Pulmonary Fibrosis

      Suddenly thrust into the role of caretaker for a gentle giant who seems to be suffering greatly from IPF.

      Treatments

      Pirfenidone Too Soon to Tell
      My SO has only taken a couple of rounds and only before bed. Anything that helps us both get a good night's sleep is helpful.
      Oxygen Somewhat Helpful
      If he takes six hurried steps rushing to restroom from bed he pants coughs breathes with great difficulty. It takes many minutes to catch breath for the short trek back to bed. The walk to the elevator and all these darn appointments is literally killing him.
    • Close Sarcoidosis

      Because sarcoidosis is so close to what my Significant Other has that sometimes I feel a mistake may have been made in the diagnosis.


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