I'm 36 have Neurofibromatosis2, Scoliosis, Depersion, Anxiety. Chronic Pain. I try to stay positive. There is noway i could get through all this with out haven GOD in my life. He is my strength everyday HE helps me in some way or another. Love the outdoors. Hot Rods, fishing. I grew up on a small farm an loved it. Wish i could still live on a farm or just out in the country. There is nothen like that fresh air you have in the country and up in the woods.
I'm 36 have Neurofibromatosis2, Scoliosis, Depersion, Anxiety. Chronic Pain. I try to stay positive. There is noway i could get through all this with out haven GOD in my life. He is my strength everyday HE helps me in some way or another. Love the outdoors. Hot Rods, fishing. I grew up on a small farm an loved it. Wish i could still live on a farm or just out in the country. There is nothen like that fresh air you have in the country and up in the woods.
I enjoy listening to music i have it on almost everyday 24/7. I like alot of music ( i can listen to just about anything except rap ). Mainly Christain Rock is what i listen to. I like to read. Christain fiction/fantasey. I am starten a new hobbie, Building model cars and trucks. Not sure if i like it yet or not. ( Mainly i'm doing it for therapey for my fingers and hands because i'm loseing use of them). Enjoy cooking. I use to go for long walks, but with my NF getting worse i can't anymore so i go for long rides in my motoerizedwheelchair. ( since i can't drive). Enjoy meetinng new people and maken new friends. Going out and haven fun with friends.
I enjoy listening to music i have it on almost everyday 24/7. I like alot of music ( i can listen to
BananaPeal09 and reags34 are now friends 5:22pm
BananaPeal09 and benzar are now friends 1:03pm
August 10, 2009 2:26am
Well i went to Long Beach Washington for the weekend for the reunion. I really miss the days when everyone was alive and everyone wanted to come to …
August 5, 2009 2:47am
Life Sucks!!!!!!!!
I'm just so sick of being in pain. No matter what i do i'm in pain.
There are things i wish i could change in my …
hi are u doing to day where in org do u live i youse to live in org place call the Dalles org
So happy to hear from you! I have been so worried about you. Please write and let me know what you have been up to.
hi to u i have nf to i live in org to for 30 year in the the dalles org know i live tx have a day
I was dignosed at age of 3.The NF2 has effected my life in so many ways i can't list them. The last ten yrs have been the worst. I've been getting new tumors seems like everyday. The amount of pain i'm in is almost unberable sometimes. I really want to meet people who have NF or chronic pain, and mabye help each other on how to deal with whats happening to our body because of the NF.
Have Scoliosis,caused by NF2.And it is getting worse and worse, the pain it causes gets to be unbearable. So far nobody can do surgery on it.
