I haven't been on in ages and I am sorry, I really believe I should...being on DS helps me.
Does anyone else have the constant tingling, like your leg is asleep? Mine is like that constantly now. I have my leg, have the permission to put it on, wear it, rock on it but not walk...go figure, now I have to go slowly, my fear has increased and I am getting too used to sitting!
I am doing my exercises, massaging the stump, desensitizing it as best I can and t still hurts. I feel like I am doing something wrong!
I want to walk on it, yet am afraid to bear full weight because of the pain...it shoots up my shin to my knee and then the shin bone hurts for hours.
I keep telling myself that I can do this! I will do this but it is sooo hard not to cry at the pain and frustration. I know the leg will hold me, but my mind says it won't...I know everyone here understands and I am sorry for venting yet again....
The only real update I have is that I am not on any pain meds, take lyrica 3 times a day and spend alot of time rubbing my stump.
UPDATED GOALS
Progress 20%
Encouragements: 4
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Gonna start with the obvious, how many. Plies. Are you. Wearing.. Was your liner a custom molded liner, not off the shelf. Let's start with that. Dean
DeanMill
Hi Monica, I'm sorry to hear about what you're going through. I'm having similar problems. The Lyrica didn't work too well for me so my doctor put me on Neurontin and it works better for me. I liken my pain to wearing a shoe 3 sizes too small on a foot I don't have. I can't wear my leg due to a chronic blister on the end of my stump. Been waiting for it to heal for 3 months. I'll have to learn to walk all over again. I hope you're better soon.
Godluvnlady57
Hi Monica, Matt here. I don't have a prosthetic so I can't relate. But I do remember when after a8 months they took the brace off my right leg (it was badly broken but not paralyzed). Anyway, they told me to go home and walk on my crutches or cane as usuall. But I was Petrified. I sat in the chair, took the brace off, and sat there. And sat there, and sat, and, ..... Finally, my father came home and I asked him to come just stand next to me and then I did it. I started out by putting prsessure on my right leg (foot) like I was ready to stand up and then relaxed, then more weight and relax then stand pushing my self off the chair arms with my hands about 1/4 way up - sat and rested. Then I took a long deep breath and just stood up and stayed there standing next to my dad. Then I grabbed my crutches and started by liftying my right foot and putting it down and stand on it with full weight. And then again and again and then ... I took my first tentative steps (with my father by my side).
It was sooo scary. I was 17 years old and hadn't walked without a cast or brace on my right leg for nearly 2 years.
So take it slow and have someone you trust and believe in next to you and start with baby steps. You'll do it, I'm positive. And in no time it will barely be a memory
I also understand the pain I have had burning electrical shooting debilitating pain in my paralyzed and now amputated (since 1998) 26 years after the accident that left me paralyzed and in pain. But I hear that once new amputees start using their prosthesis their pain level often go down to varying degrees. This is not true for everyone - and a very small % have worse pain ...
I have to go, bye mor l8r
Matt
mealsup