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  • About Me

    Image of BeatingMorgellons

    BeatingMorgellons

    Female
    Boston, MA, USA
    Member since July 16

    • About Me

      I've been a Morgellons sufferor/survivor since 2003 when i was bit by a tick. Since i did not have the typical bullseye the doctors would not listen to me that i had lyme dissease for 2 years - by then my immune system was so suppressed. Due to stress of this, surgery and epidural steriod injetions a co-infection called agrobacterium manifested. i have tried kidney, colon, liver cleanses, detoxes, scabies treatment, herbs, 9 months of anti-biotics, anti fungals, probiotics, alfalfa - you name it i tried it. Nobody listens to us - it's all in our heads. Yeah right. I have have been to internists, rheumatologists, dermatologists, infectious disease specialists, the emergency room 3 times, psychiatrist etc. i have had complete blood work ups 4 times, 5 biopsies that all come up unidentifiable. How can you have hope. I won't even get into the symptons - the list is lengthy but i have begun writing a book i hope to call "They wouldn't listen to me - the story of a Morgellons Survivor". I'm keeping my fingers crossed.

      I've been a Morgellons sufferor/survivor since 2003 when i was bit by a tick. Since i did not have the typical bullseye the doctors would not listen to me that i had lyme dissease for 2 years - by then my immune system was so suppressed. Due to stress of this, surgery and epidural steriod injetions a co-infection called agrobacterium manifested. i have tried kidney, colon, liver cleanses, detoxes, scabies treatment, herbs, 9 months of anti-biotics, anti fungals, probiotics, alfalfa - you name it

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    • Hug

      From LolaO July 24

      so many thanx 4 yr detailed message. It will take me a while to understand it alla nd then i may have some questions.

    • I’m With You

      From Leayre7733 July 20

      (((((((((((SISTAH)))))))))))) I am here for you....No matter what happens, I am always here for you. You're a blessing in my life and I support you 100%. I love you girlfriend!!!

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  • Support Groups

    • Close Morgellons Disease

      I was bit by a tick with lyme disease and went undiagnosed with lyme for 2 years before doctors would even listen to me. By then the lyme antibodies had mutated into co-infections of lyme (i.e. morgellons) because my immune system was suppressed due to intravenous steriod injections. i've suffered pyschologically, physically, mentally. No one listens to you. I've been to about 7 different doctors across the US. From Infectious Disease specialists, dermatologists, internist, you name it.

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