-
About Me
GildedButterfly
-
About Me
I'm a 39yr old proud mother of a teenage son. I was diagnosed w/MCTD n April '09. I feel like a 30yr old woman stuck n an 80yr old's body. I honestly woke up 1 morning a different person. A person n pain. I guess I'm a cougar since my husband is 12-1/2yrs younger than myself. I guess that's ok though b/c he can take care of me sooner than later.I'm a germaphob, neat freak w/ OCD. I guess that's a good thing since my husband also has OCD & germs seem 2 b inhibiting the healing process lately. I'm a nurse who fixes others, although not myself. This is when 2 much knowledge is a bad thing. I work w/ my husband. I luv my husband but it's as though 2 people live w/ n my brain. He truly doesn't understand. I'm college educated, understand logic yet don't act very logical @ times.I'm truly greatful 2 have found others w/ MCTD. I'm sorry others r inflicked w/ such a disease process but I truly appreciate everyone's insight. God Bless:) P.S. Our society will be judged by the way we treat these, the least amongst us........
I'm a 39yr old proud mother of a teenage son. I was diagnosed w/MCTD n April '09. I feel like a 30yr old woman stuck n an 80yr old's body. I honestly woke up 1 morning a different person. A person n pain. I guess I'm a cougar since my husband is 12-1/2yrs younger than myself. I guess that's ok though b/c he can take care of me sooner than later.I'm a germaphob, neat freak w/ OCD. I guess that's a good thing since my husband also has OCD & germs seem 2 b inhibiting the healing process lately. I'm
-
Interests
I luv traveling, 5 star hotels, & Michelin star resteraunts. Patron on the rocks. Caviar dreams. The silver spoon n my mouth.My supportive husband who luvs me unconditionally. My husband 4 continuing 2 provide me the life 2 which I have become accustomed. My highly intelligent son who can balance bronze & brains. I luv the fact my son believes life after high school is college or McDonald's & living n the projects. No offense intended. I luv my son's scholarship 2 Duke he was given n 8th grade. I luv poems. I luv honesty no matter how hurtful. The ability 2 always tell the truth. I luv the sound of the ocean waves. My pug dogs snuggled @ my feet; father- mother-baby. My siamese declawed $60, 000+ cat that likes 2 bite me n stressful situations. The days I can indure w/o feeling pain or the blood dripping down. If I could only understand what causes me 2 say 10 over & over again. The 1's I have so greatfully found here 4 support. My ability 2 say thanxs & mean it. The greatest agony is an untold story. Greatful! Truly........
I luv traveling, 5 star hotels, & Michelin star resteraunts. Patron on the rocks. Caviar dreams. The
-
-
Journal
This entry is private
This entry is private
This entry is private
This entry is private
This entry is private
-
Hugbook
Hug
thanks for the support haven't been on in awhile. going through a really hard time right now. miss my kids. miss my kids.
Little Love
Just checking in with you and hoping all is well. Love and Hugs, Mary
Hug
Hello-I hope you are doing good-thanks for writing- Had a bad flare for a while that kept me away. Hope you are doing good with your meds. Nice to hear from you! take care!
Hug
here's a hug for you,just because..love ,Missy
-
Hug
Hi thanks again .my dr's apointment went better than I expected. I argured my point on the one main med I was taking "Adderal" that was prescribed by my former dr. This new Dr taking his place,after a bit of an argument /discussion about it,agreed to continue to prescribe it to me. I explained to him that for me it's a "quality of life issue"..and that I intended to persue the issue to get the med. And that a dr in texas said she'd give it to me. Seems even when sick,we have to still fight for alot of things.hope you and yours are doing well. Thanks for all the advice and hugs.Love,Missy
-
Photos
GildedButterfly hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close MCTD
I'm a nurse recently diagnosed with MCTD. Sometimes more info isn't always better. I have symptoms of lupus & scleraderma:( Will it ever get any better? I think I'd give up if it wasn't 4 my son & husband. Help Needed!
Close Obsessive Compulsive Disorder (OCD)
GildedButterfly hasn’t entered any details for this support group.Open Anxiety
GildedButterfly hasn’t entered any details for this support group.Open Chronic Fatigue Syndrome
GildedButterfly hasn’t entered any details for this support group.Open Raynaud's Disease
GildedButterfly hasn’t entered any details for this support group.Open Self-Injury
GildedButterfly hasn’t entered any details for this support group.
