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  • About Me

    Image of jmolinari

    jmolinari

    Female
    San Francisco, CA, USA
    Member since July 13

    • About Me

      Part-time English professor, married, no kids, 3 cats :) Love scrapbooking and photography

      Part-time English professor, married, no kids, 3 cats :) Love scrapbooking and photography

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  • Support Groups

    • Close Chronic Pain

      I have chronic migraine and fibromyalgia. Have had migraine whole life, but has been chronic since 2006. I get 3 manageable weeks out of every 5; 2 out of 5 are really bad. In the ER every other month for pain shots, usually.

      Treatments

      Heat Working / Worked
      Makes me feel better, but doesn't eliminate pain. Just reduces it. No side effects.
      Hydrocodone Somewhat Helpful
      My "last ditch" effort - 50% of time it works, the rest of the time, it causes nasty rebound headaches. I only use it if I'm contemplating hospital anyway.
      Naproxen Working / Worked
      I use this daily (some days I use Relafen instead, but most days it's Naproxen) and it's reasonably effective. Works 3 weeks out of 5, for the most part.
      Physical Therapy Somewhat Helpful
      I go to deep tissue massage twice a week, see ordinary physical therapist a few times a month. Massage helps a LOT (I feel worse if I don't go), physical therapist I'm not sure yet.
      Topamax Somewhat Helpful
      Well, I feel much, much worse when I run out, so it does something. It does not get rid of the pain by any stretch of the imagination, though.
      Acupuncture Somewhat Helpful
      I thought it helped (better for fibromyalgia than migraines), my doctor thought it didn't help enough for her to authorize additional treatments. Go figure.
      Physical Exercise Working / Worked
      I try to exercise at least 20 minutes a day - usually walking or Wii Fit, but anything works. This seems to make a HUGE difference - if I don't do it, the migraines get much worse. If I do it, they reduce in severity and frequency.
    • Close Migraine Headaches

      I have chronic migraine. I take daily painkillers - migraines every day. 3 weeks out of 5, they work; 2 out of 5, I spend most of the day on the sofa because nothing really works.

      Treatments

      Acupuncture Working / Worked
      I thought it worked, but my doctors didn't. Go figure.
      Avoid Certain Foods / Chemicals Working / Worked
      Yeah, that is REALLY important. For me, it's alcohol (esp. wine), nuts, nitrites, artificial sweeteners, and aged cheeses. I also have to avoid ALL scented things, which is tough.
      Axert Not Working
      Caused rebounds for me.
      Botulin Toxin Not Working
      Worked the first time, not the second. Go figure.
      Caffeine Not Working
      For me, one sip of cola has the effect of about 10 cups of espresso (if I don't just vomit first). Caffeine= not good. Bizarrely, dark chocolate seems to help, though. Guess that has just about the right amount. Only works if my head ALREADY hurts, though - if not,, it gives me a headache.
      Fioricet Not Working
      Took that about...15 or 16 years ago. Didn't work.
      Imitrex Not Working
      They tried it about 13 years ago- I used to give myself the injections. Couldn't breathe. So I don't do that anymore.
      Inderal Not Working
      It worked for a few years, then stopped. I hear that happens. It was more than 10 years ago, though.
      Maxalt Not Working
      Gives me rebound headaches.
      Midrin Not Working
      Took that one...somewhere between 15 and 17 years ago. Didn't work.
      Naproxen Working / Worked
      Works pretty well 3 weeks out of every 5. I take it daily, round the clock, at this point.
      Relpax Working / Worked
      Works most of the time.
      Topamax Somewhat Helpful
      I feel much, much worse when I run out, so I assume it does something, but it certainly doesn't work on its own.
      Zomig Working / Worked
      Works most of the time. Tastes like SHIT. Can't they make this stuff in a pill you swallow?
      Physical Exercise Working / Worked
      I exercise at least 20 minutes a day. When I dont the migraines get much worse. Doing it seems to reduce frequencyseverity.
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