DebbieG71's Journal

So this is my first journal entry.  I went to the rheumy yesterday...who I am glad to say I am very happy with.  Every time I leave her office though, my head is spinning.  Many times after I leave I wind up crying because I get so overwhelmed.  I just started Cellcept 4 weeks ago and she increased me now to 2000 mg a day.  I have been so tired all the time and am hoping that the cellcept is the answer for my Sjogrens.  Mtx did nothing for me, it was like I never took anything when I was on it. I had a flare up every 3-4 weeks.  So now I wait to see if this new increase and drug is  the answer.  On top of it all I have still had pain and awful nights sleep due to the fibro.  I am on cymbalta, and now we are talking about adding Lyrica to the equation, so that I can eliminate, hopefully percocet, soma and arthrotec.  all of which I take as needed for pain and spasms.   A little nervous about that one.  I also have been having chronic bladder infections since May.  I had a sistoscopy and they said my bladder looks great, so why these constant infections that dont go away?  I also got clearance and a thumbs up on my kidney functions.  So the mystery continues.  I feel like I keep taking all of these pills and I wake up feeling almost the same.  I have had a couple of good days admittedly since starting the Cellcept.  Oh and in addition, because of the immuno-suppressive drug that I am on now, my rheumy wants me on Bactrim which is an anti-biotic 3x a week as a preventive measure for infection.  My pill box just keeps on growing and my head keeps on spinning............