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  • About Me

    Image of Lenore1

    Lenore1

    Female, 40
    CT, USA
    Member since July 10

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Endurance

      Mood August 30, 2009 5:16pm

      I made a mistake and stopped taking Lyrica. I also thought that oxycodone would be better than morphine for pain. I'm so desperate for pain …

    • Feeling The Burn and Burning Out

      Mood August 7, 2009 4:10pm

      So maybe the Lyrica was actually doing more good than I thought.

      The stuff makes me feel bloated, I’ve gained 15 pounds, it makes me eyes …

    • Beginning Again

      Mood July 12, 2009 12:25pm

      Today is as good a day as any to start a pain journal.

      I tried writing in one a couple of years ago but found the entire process too painful.

      Sitting …

    Read Journal

  • Hugbook

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    • UR Welcome

      From Panadeine September 2

      You're so very welcome Lenore. I know how hard the struggle of cp is. It robbs us of just so much. I really hope you are feeling better. Please remember I am always here for you to chat,vent,moan. Please take care.
      Wendy

    • Hug

      From Panadeine August 30

      I'm so sorry you are in so much pain. I have just been reading your journal. I can relate so much to how you are feelings and the lost time. We will never get it back. I have just been put on Lyrica and Oxycontin. I am also still on Tramal (Ultram in some places.) I have started seeing a new pain doctor who has found out the cause of my cp. I have an impingement of a nerve and a bulge in a disc in my back. After all these years,I finally found someone who got off their backside and decided to do some tests. He told me it's no wonder everything else I have had done has failed. I am now facing spinal surgery which Dr Jackson said is the only way to fix it. I have been told that the Lyrica can take a few weeks to work. I hope you can struggle on. I know if it wasn't for my hubby and son I probably would have done something to myself. Please take care and I'm always here for you.

    • Hug

      From Panadeine August 8

      Lots of hugs coming your way my friend. Thank you for the hug you sent to me. Take care my friend.

    • Hug

      From Panadeine August 7

      Hi Lenore. I'm sorry to read that the doctors can't block the nerve for you. Is there anything that can be done? I had the nerve cut in April,but that didn't work. I've had two nerve blocks in the past and had the nerve frozen twice but they didn't work. I hope this new pain doctor can do something. Hang in there. Take care and here for you.

    • Hug

      From Panadeine August 5

      Here's a big hug for you my friend. Hope you are going okay. Here for you always. Take care my friend.

    Read Hugbook

  • Support Groups

    • Close Chronic Pain

      Chronic NervePain since 2005 RCC status post nephrectomy -remission

      Treatments

      Cymbalta Not Working
      Tried it for several months. Wrecked my Libido and didn't help with pain so stopped using it.
      Flexeril Somewhat Helpful
      Helped with muscle tightness but made me too drowsy. Also didn't do much for pain so switched to pain killers.
      Heat Working / Worked
      Works when the pain is moderate but ICE is better for acute pain.
      Lidoderm Not Working
      Didn't work at all for me.
      Lyrica Working / Worked
      I noticed a difference when I began taking this but now I'm not so sure it's having any effect. I take 150 mg 2xd
      Marijuana Considering
      I'd like to try this if it becomes legal. I've heard that it works wonders for nerve pain. RI just made it legal for pain sufferers so there is hope. Make it Legal NOW!
      Meditation Not Working
      Who can meditate while in pain? I can't.
      Morphine Working / Worked
      Works better than anything else. Make me constipated but I'd rather be that than in severe pain.
      Nerve Blocks Working / Worked
      Trigger point injections work for about 24 hours on me. It's the lidocaine in them that work. The steroids don't help at all.
      Neurontin Not Working
      HOLY MENTAL PROBLEMS BATMAN! I had to stop becuase the mood swings were incredible! Crying one second manic the next. No thanks. I get how it works though. You forget you're pain because you're too busy being Crazy!
      Oxycodone Working / Worked
      Oxycodone worked for me but became so hard to get without the tylenol in it I switched over to morphine. Big Pharma should cater to the needs of patients instead of following the money. HA! like that'll ever happen.
      Physical Therapy Not Working
      NO WAY! There's no way anyone could lay their hands on my ribs. I'd go through the roof!
      TENS Considering
    • Close Renal Cell Carcinoma (Kidney Cancer)

      My dad had RCC and died. My good friend had RCC and died. I had RCC and I'm alive.

      Treatments

      Nephrectomy Working / Worked
      So far so good.
  • Friends


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