Xyrem - good and bad! and the EMOTIONS!!
July 9, 2009 9:10am
I have been on Xyrem for about 3 months - 3g X 2 per night. I have been through it, well a lot of it. Snacking, fighting sleep (weird, …
tdramer
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tdramer
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Close Narcolepsy
I ama 55 and diagnosed in late 2008. I am an RN. I had started teaching nursing for the first time until it was a REAL problem with sleep at work - actually falling asleep and being written up. Even though they are in healthcare - didn't get that I was narcoleptic. Started Provigil YAY! then in the last 2-3 months I began Xyrem - would like to know others experiences with this bizarre and wonderful medication!
Treatments
- Provigil Working / Worked
- Some over-excitement at first as well as insomnia until I worked with it and got it "right"
- Xyrem Working / Worked
- Xyrem 3mg X 2 each night. (2-2.5 hours apart) I have had several strange experiences that I haven't read about including EXTREME frustration and crying-and what is this deal with "fighting the Xyrem" - I read this on another blog . . .that is silly - but I am doing it too sometimes. I think it may be a personality issue rather than a narcoleptic one. We are torn - we know we need to take the Xyrem and can do "a few more things" before it takes effect . . so we (I) "push" that window.
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