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bnndaniel 
I guess I was expecting more out of this group than the group is willing to give. I also was brought up that you only get out of something what you are willing to give I don't know if I tried too hard or you people have just gave up and wanting the rest of the world to feel sorry for you. Well they don't and they (we all) have bigger problems in the world so you have to at least try and help yourself a little. I only wished you all were more responsive to the inputs as you probally will be to this one at least.
i
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Hey, I'm sorry again for the delayed reply (did you get my message?), I was at the beach this weekend..
vikkivance
Sorry I have not written much I am not much of a writer but am willing to share anything that I may have to offer. CMT is not fun but I am one of the lucky ones their are others in my family that were effective a lot more than I. CMT has given me very little trouble most of my life it has only been in the last 5 or so years that I have noticed the loss of muscle mass. It is hard for me to know if it is the MS or the CMT. Write if you would like to converse.
nonna85374
Yes it is a restricting type of desease but I lived a pretty good life up till now and I didn't even know any thing about this CMT I thought it was just me. That is why I am trying to get to these other people they give me the feeling that they are just ready to give up on it all, And I would like to at least hear them and their difficulties and so on and hope I can help them and possibly learn more about this CMT.
bnndaniel