Kehrie

Open Endometriosis

I was diagnosed with Endo at 25, doctors feel I've had it all along since shortly after menarche began. I've tried Depo Provera - gave me weak bones - Osteopenia -> Osteoporosis. Had 2 Laparoscopies, 1 D & C. Scheduled to get my 3rd Laparoscopy done before Christmas.

Treatments

Aygestin Working / Worked

Again, relief while I took it. A big interruption to my cycle and did reduce the endometriosis and adhesions till I had taken it for the max time and 2 months after stopping the med, everything returned..

Hysteroscopy Working / Worked

A few months relief.

Laser Surgery Working / Worked

Not really. Some relief. They won't remove any Endometrius or adhesions now, they're worried it'll affect my fertility - being 36 and so far childless, I want a family and so as yet am unwilling to take that risk myself either.

Progesterone Working / Worked

Reduced pain and clotting for 6 months, then back to my usual Endo self.

Provera Working / Worked

Stopped my cycling completely but side effects of weak bones - Osteoporosis means I'll never do that again.

Surgery Working / Worked

3 months relief.

Open Osteoporosis

I was diagnosed with Osteoporosis at 26 years of age, after 2 fractures I incurred that fractured bones that doctor said would normally require a car accident, and I did them standing up.. Fractured the neck of femur - 3 pins. Fractured my thumb and tore the ligament away from the joint, by using my hand to stand up from sitting on the ground...

Treatments

Actonel Too Soon to Tell

Taking this now. Dexa scan shows minimal improvement in my hip, but deterioration in the lumbar spine.

Calcium Somewhat Helpful

It's hard to tell. Doc says that my blood calcium levels are fine. They don't know why my body won't absorb new calcium into my bones, my body excretes any inputted calcium as waste material..

Fosamax Working / Worked

First Osteo drug I tried. Wrecked my stomach - horrible medication in my book.

Open Polycystic Ovarian Syndrome (PCOS)

I was diagnosed with PCOS at age 19. Doctors just monitor it basically as I'm being treated for multiple conditions including Endometriosis, Osteoporosis, Trigeminal Neuralgia and High blood cholesterol..

Treatments

Depo-Provera Working / Worked

Effective for 4 years - had to stop as this drug weakened my bones. Was never told about this as a potential side effect. But Doctors acknowledge this as a risk factor while taking Depo. Damage is done and so far is irreparable.

Progesterone Working / Worked

Brief respite for a few months.

Provera Working / Worked

Brief respite for a few months.

Open Scoliosis

I'm here because I have scoliosis. I didn't learn that till I was 21 after I'd fractured my left neck of femur and had 3 large steel pins placed in there. The hospital doctors x-rayed my entire spine to check it out and found the scoliosis then. They said it should have been treated when I was a child. So Nothing has ever been done to correct it, and I know now, that it is getting worse. It's frightening me but my GP says don't worry.

Open Insomnia

I want to join this group, because I too suffer insomnia and I need help from fellow sufferers, the support that we can provide each other will be a comfort to me.

Treatments

Ativan Working / Worked

Worked for a few days only.

Counting Sheep Not Working

Lavender Not Working

But smells lovely.

Meditation Too Soon to Tell

Music Somewhat Helpful

Passion Flower Considering

Reading Somewhat Helpful

Valerian Not Working