Fascinating Day!!!
November 6, 2009 8:48am
I have a new friend who like me has MS. She is quite a bit younger than I am but she is just a joy to be with. She’s full of life, …
GrammieP
7:55am, August 7, 2009
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About Me
GrammieP
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About Me
I am in my 60's and was d/x with MS in 2002. I have had some rocky years but finally have my head together and have accepted the fact that I have MS!!! I have 3 grown children, a beautiful granddaughter named Sophie and two grandsons, Mason and Benjamin. My husband and I have been married 40+ years and with each year it gets better. I am retired and more busy than when I worked. We moved to NH in 2004 into our dream retirement home. Hubby is still working but hopes to retire in the next few years. Our home overlooks two mountain ranges and two lakes. Living in the city for sooo long we forgot what beauty there is in the night sky, sunrises and sunsets. I am so connected to nature, especially trees, rocks and the wind!
I am in my 60's and was d/x with MS in 2002. I have had some rocky years but finally have my head together and have accepted the fact that I have MS!!! I have 3 grown children, a beautiful granddaughter named Sophie and two grandsons, Mason and Benjamin. My husband and I have been married 40+ years and with each year it gets better. I am retired and more busy than when I worked. We moved to NH in 2004 into our dream retirement home. Hubby is still working but hopes to retire in the next few years.
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Interests
Gardening, reading, enjoying our part-time Home Based Internet Un-Franchi$e, blushingmoose.com, writing poetry, (when my hands and brain work) and messing around on the 'puter
Gardening, reading, enjoying our part-time Home Based Internet Un-Franchi$e, blushingmoose.com, writing
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Recent Activity
Recently:
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2 hugs given, 2 hugs received, 1 group discussion post, 1 discussion post
Thursday
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GrammieP gave handipeep flowers 6:44pm
Hello and welcome to DS. I love it here and have made many friends. The information and support from…
Wednesday
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GrammieP wrote a discussion post in the Multiple Sclerosis (MS) support group: Top Ten Reasons for Having MS 6:24pm
Top Ten Reasons For Having MS 10. Get rock star parking with your new handicapped license plates. 9.…
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GrammieP gave hunterD a thumbs up 6:20pm
Dave, thank you! Now why didn't I think of that. Tomorrow morning, tea in a travel mug. ooxx Marti…
November 11
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GrammieP wrote a discussion post in the Multiple Sclerosis (MS) support group: Baclofen HELP!!! 9:39pm
I was put on Baclofen on Sat. by my neuro and I have been through torture and it's only Wed. I also take…
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Journal
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Life is Rolling On
October 28, 2009 3:45pm
Well, life has a way of rolling on … Hon got the job and starts on Nov. 2. Bad news is that the commute is 1 1/2 hours one way. But, we are …
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I Need a Wife!
October 20, 2009 4:07am
It’s 3:18 a.m. and another night of not sleeping! I can’t shut my mind off and my legs are killing me. Are we moving or are we not …
This entry is private
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A New Life Journey??
October 2, 2009 8:47am
Hon is being recruited by his company to take over the radio station as General Manager and Sales Manager in the southern part of the state. Our …
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Hugbook
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Ray of Sunshine
hi, i'm new here and i just read your profile and it sounds like you live in NH? i'm your neighbor if that's the case :) anyway, love your profile, attitude, and i wish you well in your new life journey! sounds exciting. i would LOVE to move to a condo - my husband ... well... it's never gonna happen (w/ him) ;( anyway, just wanted to introduce myself and i hope this finds you enjoying sunshine today!
a fellow ms-er -
Hug
problems holding hot tea? try a travel mug that has a sealable lid. helps me with the coffee, and the mug holds more than a mug does!!!! saw your post in the positive ms group and wanted to reply. dav e
Flower
I am so glad you had a great day! I know that feeling of being in the hands of a good neurologist because I was at mine this week as well. But I saw his assistant (who was 12! and who was a barbie doll - he he - she had bright pink polish on her finger nails and the cutest high heels - who would know that she is smarter than a whip) but she told me about an MS trial that our hospital was having. So when you get all settled at your new place, just find a Neurology group in your area and see about MS trials, you also get paid for your time. There are usually some parameters for meeting these trials and I don't meet the one near my doctors but you may and you may benefit. It is wonderful when you finally meet a doctor who cares. I found my doctor off of the www.endthepain.org or the trigeminal neuralgia association website and he was finally someone who knew who to treat the pain. Well, I am still in pain though, I wish the docs would give me enough medicine to get out of pain. I am going up on my neurontin though so that might help. Well, good news to lift your spirits and I hope you have a great day! My four year old has a play date and my nine year old has a sleep over so I will be busy today! Love, -Holliday
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Congrats
That's great about the job! I hope everything works out just perfect! And I hope you have the strength in the process. It is the middle of the night and I am trying to type some encouraging words :o) I hope your TN and MS lay low and that you can get through the move without them bugging you too much. I woke up to take some pain medicine so I know first hand how painful it can be. I just hope that you can have some good help so that you don't fall and get hurt either. Well, that is my zombie advice for now, he he, LOl, take care Grammie P! Love, -Holliday
Hug
"get" was supposed to be "KEEP"! xo Cj
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Progressive Relapsing MSAs of 9/9/07 I decided to stop taking Copaxone and feel better than I have in ages!! However, NOT recommended unless your neurologist approves!!
Treatments
- Neurontin Somewhat Helpful
- My feet and hands hurt, tingle and are numb all the time. The Neurontin helps but does not totally relieve the symptons.
Close Trigeminal Neuralgia
I was diagnosed in 2002 with Multiple Sclerosis. In the past several years I have had on and off stabbing pain in my right ear and on occasion my left. It feels like being stabbed with an ice pick. Quite nasty but it would only last a few seconds. I would get every few months. Lately, I have been having the pain more often and it now lasts for approx. 3 days. I am seeing my neurologist this week and hope he can be of some help.
Open Restless Legs Syndrome
Strolled over from MS group. RLS is getting worse and worse.
Treatments
- Mirapex Somewhat Helpful
- This works but I am having difficulty sleeping the nights I take it. I have tried taking it consistently but I still cant sleep. It works fair on my legs.
