Sept 27, 2009
September 27, 2009 2:09pm
Well this is my latest foray into trying to keep some sort of Journal of my day to day life. I've had a bad week, really a bad month. …
MonicaMM
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About Me
MonicaMM
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About Me
Recently found out I am going to be a Grandma. Currently on disability from work and waiting for SSDI to go through. I am bored stiff. I should say stiffer, I was already stiff. :)
Recently found out I am going to be a Grandma. Currently on disability from work and waiting for SSDI to go through. I am bored stiff. I should say stiffer, I was already stiff. :)
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Interests
My Kids (grown now), genealogy, needlework, sewing, reading, mostly things I can do sitting down. :)
My Kids (grown now), genealogy, needlework, sewing, reading, mostly things I can do sitting down. :)
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Recent Activity
November 10
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MonicaMM and NVBarbarella are now friends 4:41pm
September 29
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MonicaMM turned 46 12:00am
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Journal
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Hugbook
Prayer
Dear Monica, I pray for you my friend, I am so sadden by your respose to my post a few days ago. I pray that you will find yourself again....
xx Amy
Hug
Thanks Monica :)
Hug
I just started Cymbalta and read that one of the rare side affects is problems starting a urine stream. So, it could be the meds. The problem with MS, is that we don't know whether our problems are MS related, other health problem or med. side affect. It is frustrating and I try to keep my sense of humor!!!!!
Flower
Hope your are feeling well. I am registered for the conference and excited to see what it is like. take care. M.
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Flower
Welcome Monica! I see you are in GA. The Nacrolepsy Network National conference is in Jacksonville FL this Oct.. The info is in my journal. I am a Xyrem fan too!
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Photos
MonicaMM hasn’t uploaded any photos yet
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSHave MS and need someone to talk to on occaision.
Treatments
- Avonex Working / Worked
- Currently using, seems to be helping but bad side effects for me. Doc suggested Tysabri but I am terrified of the possibility of PML. I have a history of getting what others don't get or having atypical symptoms of what I do get.
- Copaxone Somewhat Helpful
- I still have lumps and dimples in my legs from the constant injections, I stopped taking it when I fired my Neuro at the time.
- Neurontin Not Working
- Did not work, too many side effects for me
- Provigil Somewhat Helpful
- It did not give me the energy I needed to actually do anything so I was just as well off without it
Close Narcolepsy
Recent diagnosis of Narcolepsy to go along with my MS. Mainly information and support.
Treatments
Open Chronic Pain
Support and information.
Treatments
- Cymbalta Not Working
- Cannot tolerate
- Flexeril Not Working
- Can't tolerate
- Heat Somewhat Helpful
- Had to stop because I actually damaged the skin on my back to the point it was discolored
- Hydrocodone Somewhat Helpful
- Stopped due to fear of acetamenophen/liver damage
- Methadone Somewhat Helpful
- Don't care for the side effects, profuse sweating mainly and of course can't poop
- Neurontin Not Working
- Couldn't tolerate side effects
- Oxycodone Working / Worked
- Works best but Doc does not give me enough, I am currently using it for breakthrough pain
- TENS Not Working
Open Pet Bereavement
We recently had to euthanize our lovely, wonderful and loyal friend Snowball, a Lhasa due to oral cancer. This is the third elderly and ill pet we have had to euthanize in the past two years.
