Dianni's Journal

I went to my GP in October 08 feeling unbelievabley tired. She did a full physical and referred me to a neurologist. By February 09 I'd had an MRI, EPT and lumbar puncture. On April 22nd I was dx'd with 'chronic onset primary progressive multiple sclerosis'.

In September 08 I was walking my dogs at least 3 miles a day, running around after my two fantastic baby grandsons, managing the house and all the people in it, making cakes as a hobby, writing professionally, weeding and planting my larger than average garden and generally enjoying life.

I now struggle to walk around the house without using walls and furniture, I can't go in the garden without my stick and can't go out of the garden without my wheelchair.

My family is unbelievably helpful and supportive. I have amazing support from my GP, neurologist, OT, MS nurse and am waiting for an appointment with the continence nurse and a counsellor.

I try to stay positive and cheerful, especially with my friends and family. However, I am finding it very difficult to come to terms with the rapid decline in my physical abilities. It feels like every other day another symptom raises it's ugly head and I lose a little more. Once lost, I haven't recovered any abilities so it is more than a little frightening.

Everything I have read and been told suggests that even with PPMS, progression is usualy gradual and a plateau is reached. I am confused as to why I have been hit so hard and fast.

I have been told that there's nothing available at the moment that will slow progression until today when I was told about this site. I have yet to read any posts, but I believe there are a number of people here who have had success with LDN. I am looking forward to finding out more and then maybe ebing able to chat to my health care providers. Watch this space!