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  • About Me

    Image of undeserving1

    undeserving1

    Female, 42
    Pgh., PA, USA
    Member since July 3

    • About Me

      Diagnosed 3/08 with Acromegaly, now taking Sandostatin LAR 1 x monthly. I am 41 yrs old and still work full time. Married with 2 children ages 19 and 14.

      Diagnosed 3/08 with Acromegaly, now taking Sandostatin LAR 1 x monthly. I am 41 yrs old and still work full time. Married with 2 children ages 19 and 14.

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  • Hugbook

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    • Hug

      From JeriTX July 11

      Welcome to our group! Hope we can provide some encouragement. I was in Pittsburgh last summer and really enjoyed it. Much cooler than TX today at 106 degrees!

    • Hug

      From J0KEYJ July 5

      Thankyou so much for your hug.Ive took a quick peek at your profile you have two children I have a daughter 15 and a son 17 my family keeps me going your photos you have a lovely family :).Things are tough for us dealing with this conditon and life issues I agree take care JJx

    • Hug

      From J0KEYJ July 5

      Waiting for you is a big hug from Jokey J

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  • Support Groups

    • Close Acromegaly

      I earnestly searching for others for suffer from Acromegaly and for help and support to encourage me on my journey.

      Treatments

      Octreotide Too Soon to Tell
      I just started getting the injections June 19th. The side effects aren't as bad as I had expected but they are a doozy. After receiving the shot I became so tired that when I got home I slept for a couple hours and stayed very tired for 2 weeks. The dizziness and nausea came and went so fast I couldn't keep up with it. I had little stomach pain but did experience headaches. Overall eventually I feel a little better than without the medication, so for now, I will say it is worth it.
      Physical Therapy Working / Worked
      Its been 4 weeks and I am seeing encouraging results. Not just with the disease but also with the ruptured disc and scoliosis I suffer with. Also chiropractic adjustments are a true blessing and add much relief!
  • Friends


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