What more can SjS throw at me?
October 9, 2009 6:26pm
After such a good week last week this week has been so disheartening! I ended up leaving work by ambulance on Wednesday. I was feeling a …
Progress
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SonyaR
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About Me
SonyaR
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About Me
I have just recently been diagnosed with Sjogren's. I am one of the lucky ones who was diagnosed quickly (4 months). The Rheumy I was referred to is very caring and sympathetic. I am a mother of 3 boys, with only one still living at home full-time.
I have just recently been diagnosed with Sjogren's. I am one of the lucky ones who was diagnosed quickly (4 months). The Rheumy I was referred to is very caring and sympathetic. I am a mother of 3 boys, with only one still living at home full-time.
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Interests
I have 2 great danes that are both registered therapy dogs. Sierra is the one in my profile picture. I visit the local lbrary with her (the picture is from her birthday party). Coah is my 4 year old male. He is more of a handful but loves visiting the residents at the nursing home. I have had to stop visiting with him due to my joint pain but plan on starting back up this week.
I have 2 great danes that are both registered therapy dogs. Sierra is the one in my profile picture.
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Journal
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Changes in Lattitude = Changes on Atitude
September 30, 2009 6:55am
Not sure if it's because I'm on vacation or if the North Carolina Beach is the cure but I have been completly pain free for FIVE days …
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Things are evening out!
September 12, 2009 7:02am
Things are finally settling down with my life!
My Mother is starting to recover from her hospital stay. They finally figured out …
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Flare due to stress
August 23, 2009 4:57am
Been a long week with lots of stress.
My Mother has been in the hospital for the last week been worried about her and my Dad. She finally …
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Goal
August 6, 2009 5:47am
http://www.youtube.com/watch?v=e8rG9GIWiNQ
This just makes me laugh! I hope to get the SjS under control enough to try and do this with my …
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Hugbook
Hug
Could be the vacation, just relaxing. Bet you wish you could take a 52 week vacation now. lol I'm okay with pain, just some other problems popping up.
Did you drive or fly? I know the drive would be a long one.-
Chocolate
Hey lady, how has things been going for you? How has work been and did you finally buy that car for your son?
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Ray of Sunshine
Hooray for sunshine and relaxation!!!!
Ray of Sunshine
Sonya,
I called the Sjogrens Foundation a few months ago and he told me that there is a woman in my area who runs a support group or was trying to start one. I called her and left a message asking about her group and if she needed help but she didn't call me back. I got a lot sicker and never followed up. I think the most frustrating thing about the disease is the lack of treatments. I am on plaquenil but it doesn't seem to help very much. I am going to the Cleveland Clinic in 2 weeks to see a rheumatologist there so I will see what she says. I can't imagine feeling like this the rest of my life. How long have you had it?
Have a good weekend!
Marcie
Little Love
Thankyou for the hug, my feeling pour out of me like an overfull well. sometimes, well often..............
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Photos
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Goals
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Support Groups
Close Sjogren's Syndrome
I was just diagnosed 2 months ago with Sjogren's syndrome. From what I have read I am one of the fortunate ones and it only took 5 months to be diagnosed.
Treatments
- Pets Working / Worked
- My two registered therapy dogs are a blessing every day. The one even seems to know a day ahead of when I will have a flare up.
- Prednisone Not Working
- allergic reaction
- Plaquenil Working / Worked
- joint pain is improving
