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MichDave 
4:35pm, October 12, 2009
Today I joined DailyStrength. I see it as a place that will provide some needed friends and much appreciated advice as I go through this journey ...... this battle with colitis.
After more than 25 years I am arriving at the point of requiring surgery. The drugs don't work as well as they used to. The side affects are unacceptable. My energy level is low. I can't sleep through the night. I feel tied to the toilet. I feel like I am 25% the person I used to be.
Although the surgery process may take 9 months out of my life, I will end up drug free on the other side. Assuming no serious complications I will have energy and freedom. I need freedom. We all need freedom.
Comments
I'm in the process of weaning myself off from prednisone. Today I lowered the amount to 10mg. I had been at 15mg for more than a year. If my UC symptoms get worse as I come off from prednisone, I will take it as a sign that surgery is my only option. (Currently I am on Humira, taking the best probiotic and many other suppliments, and avoiding milk in my diet.)
MichDave