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rainmom2 
3:50pm, July 8, 2009
I went to sign up on the Autism site, then quickly took my name out, as I don't agree with most of what is said & I've had 27 yrs of experiencing Autism first, well, maybe second hand. Both of my adult sons have it, and totally opposite ends of the spectrum. Noone loves their children more than my husband & I, and we wouldn't hesitate to do anything in the world for them that would be beneficial to them, & as a parent of a child/person with different ways of learning, I'm sure that most of them feel the same. I have been on a CA State Disability Board for years, & also was a strong parent advocate-still am & will always be since I've had conservatorship of my severely Autistic son. I feel strongly & very positively about what I feel, & I respect others who have feelings that they can change, or 'heal' Autism. I guess I'll just stick to my own syndrome & read up once in awhile on the Autism site. This is very typical to have this let down, but we are positive & happy over here & I intend to keep it that way. We're all in the same sea, but swimming down different streams & I wish you all the luck in the world with your 'healing' & 'overcoming'.
I'm not sure what 'goal' there could be for me as of yet. I am just thrilled that I found this site, where I can research my fibro & anxiety. I kinda wanted to do a bit of research on Cerebellar Atrophy, but can't find it on this site.
I get very angry with myself, because I can just see & hear in my mind, me telling my husband that when I overdo any type of exercise, I end up laid up for the next few weeks . I then go through a time feeling better, but afraid to get back onto my exercise regime. I just did all that yet ONE more time. Geesh, you'd think that I'd learn by now to stop doing that. Now that I'm feeling better, I'm hesitating to start again, but in a few days, I'll have had enough & get going again. I'm so glad that I can talk with other people that relate to what I'm talking about.
I have researched Autism for years, due to both my son's having it. I had been burned out from reading anything that has the word 'Autism' in it. I'm ready to start reading about it again. I really get upset when 'the latest' thing to say is that someone 'healed' a person of autism. First of all, it's not a disease that needs to be healed. If they actually 'healed' their child, then the child was misdiagnosed in the first place. Autistic people learn to ADAPT, & don't NEED to be healed. I shouldn't go on & on about this, but it's one thing that really bothers me & through all of this media about 'healing', I now have my Asperger's son who is 25yrs old, telling me that he feels bad because he must not want it bad enough to overcome it. After a long conversation with him on that subject, he & I agree that there is nothing to 'heal' . It angers me that even a person who actually has this, gets bombarded with media junk. He's doing excellent & we're very proud of him & his much lower functioning brother too.
On the Cerebellar subject, I wish there was a place on this site to look it up. Now that I have found that I have it, it scares me, as I don't fully understand what it is- well, I think I do, but I'm sure there is alot more to it than balance, tremors & headaches.
I can relate with people who have the same maladies as I do, & hopefully learn how to deal with all that comes with them.
I'm afraid to look into the anxiety part, (which is probably part of anxiety in itself)! I know I have it running rampid in my side of the family, but, I know that as I get older, it seems to be getting worse. I've been doing alot of yoga, meditating, & I love to bellydance & walk on my treadmill or down our road. I'm still frustrated about what else may help me with this, but won't read up on it. Stubborn too, is that a part of 'something'!
I'm just real happy right now that I have found this site.
