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The Journey Mood
Saturday, July 4, 2009

I don't know where to start so I guess I will start with our journey six years ago.  I will never forget that day, still perfect in my memory.  Our daughter was in first grade and came down with a terrible cold and I knew the Doctor would only give us an appointment if it was really bad.  I exaggerated the truth, said it was terrible and had lasted for more than two weeks already.  Wow it worked, we got an appointment.  My darling daughter actually had pneumonia but what we found in the xray was a real shock.  The Doctor's words were "Well, your daughter not only has pneumonia, she also has Scoliosis".

                

 What? How? Why? When?  It really didn't register, she was only a pediatrician, what did she know?  The next week we were in the Orthopedic's office to confirm the diagnosis.  Yes she did have Scoliosis and it was already at a 27 degree curve.  How could this have happened?  Where did it come from? How come the Doctor's never found it earlier? The MRI didn't find anything unusual so it was labeled Idopathic Scoliosis.  We would try the Brace to slow down the curve which was bound to get bigger with the growing process.  After all my little seven year old child had some major growing to do.  The goal as you all probably know was to stay under 40 degrees.  After that it would probably mean that we would need surgery to correct it.  Over my Dead Body is what I said.  I was really hoping that by wearing the brace as faithfully as my daughter did, we  would not need any surgery and even if the curve go to be a bit past 40 degrees, we would bypass any surgery.  We were told at the beginning of this journey, the surgery is major and painful; knowing that made my daughter wear that darn thing 19 hours a day.

 

I will jump ahead to last year when my daughter was in 5th grade and she had a huge growth spurt.  I am thinking good maybe she is almost done growing and I certainly don't see anything different with her posture.  The dreaded Doctor's appointment shows she had progressed to a 37-39 degree curve.  My positive mind says we are still okay cause she must almost be done with her growing, she is already standing at 5'1". 

 

Today it is one year since her last check up and boy did things go wrong.  My daughter had another huge growth spurt and now stands at 5'4", there are no signs of her growth plate changing which means she still has major growth left, and her curve has progressed to 54 degrees.  OH MY GOD!

 

The next step is Surgery....

 

I cried for several days and tear up very easily but never around my daughter.  I have never been so scared or have felt so hopeless.

 

 

 

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