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Sleppy1962 Mood
Tuesday, June 30, 2009 | A Frustrating story

I hope someone can help me. In October 2008 I sarted having problems at work with staying awake. By the end of the month I was falling down, having hallusanations well driving,and saying thing that did not make sence in conversation. I was diognosed with Narcolepsy in December . I since then have been on a number of treatments and have just started on Xyrem. I am sleeping well and I can stay awake most of the day ( I still take one nap at 6:00 pm)but I still have cataplexsy once or twice a day. I have been onXyrem for 4 weeks 3.0 mls 2 time at night. I am wondering if anyone can tell me when the cataplexsy will stop,or if they had the same problem with it lasting so longer after starting the treatment. I want my life back I want to go back to work, and go out for a walk. I have missed two complete seasons Winter and Spring now its summer and I am sick of not being able to go out wihtout fear of falling.

Thanks Sleepy1962

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