tammiebradfute
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About Me
tammiebradfute
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About Me
I have a 9 yr old daughter who has salt-wasting CAH
I have a 9 yr old daughter who has salt-wasting CAH
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Support Groups
Close Congenital Adrenal Hyperplasia
To help other parents w/ kids wo have s/w CAH. I also have questions for other parents w/ CAH issues
Treatments
- Florinef Working / Worked
- no problems w/ lack of salt in blood work. We take 0.1 mg daily. e also take cortef 10 mg am,5mg at 3:00pm and 10mg at bedtime. we take genetropen(growth hormone 2.8 mg injection nightly. Arimidex 1 mg tab in the am. also we always have our solu-cortef stress injection. We see Dr Shelia Gunn at Tx Childrens in Houston Texas. We do alot of praying and see seems to be fine. Understatement,SHE IS THE BEST!!! Smart,beautiful,witty,the best thing my husband and I have in our lives!!!
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