Arild

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  I’m With You

  From UlrikeCT August 27

  Hi! When are you seeing the rheumatologist? Can your primary doctor order the anti ANA and anti DNA test? These are the typical tests for Lupus. I think I told you I have Lupus (in your case too it could explain your joint and weakness problems) My pituitary tumor surgery is booked for Sep 11th. However my endocrinologist may still find a way to treat with meds. I had 16 different lab test ordered last week, the results take up to 10 days to come back. You really need an endocrinologist!
  Ulrike

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  Hug

  From mctrjt August 25

  Just want to say hello and welcome...so impressed with the way you answered all the comments on the discussion...!!! Seems like you are really in good shape...I also have had 3 sleep studies done...they gave me a C cap machine before I was diagnosed...with acro... I was unable to sue the machine as I felt I was drowing with it but since my octeotride shots and surgery...now I do not take any medication yet...my tongue is much better...

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  Hug

  From UlrikeCT August 25

  Welcome, I am glad you found us. Hang in there!!!!!!!!!
  Ulrike

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  Moment of Peace

  From PapillonRoseBleue June 28

  I'm wishing you peace from the pain and uncertainty and that you will find the medical care that you need and deserve.

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  Flower

  From orit June 28

  welcome to our family. and wishing you well,

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