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Lung Transplant Mood
Wednesday, September 2, 2009 | A General Update story

Morning - well I've finally stopped running around to doctors (at least for a while) - I had thought that they would do another long volume reduction surgery - but after going through many tests they said no on the LVRS but sent my file to be reviewed by the transplant department.  A little scary but exciting too - I am hoping that they can do something for me - I'll keep you all posted.

 

Oh, and I start pum rehab on thursday (that will be my 3rd rehab)

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  1. roepete

    Moorning guys - sorry I haven't been on this website for a long time - astill runing around getting tested for a lung transplant - I have six more tests scheduled in the month of December - but I have great news - my only child (a daughter) is pregnant with what will probably be her only child - I am literially walking on clouds - she is due inmay - I can't wait.

    I'll try to be better with keeping in touch - hope everyone is well


    roepete

Using oxygen Mood
Friday, July 3, 2009 | A Call For Help story

I visited my pulmonary doctor yesterday and he emphysized the fact that I needed to use oxygen -I had lung volume reduction surgery in 2001 so you would think I'd have no problem with oxygen - wrong -  I have no problem with using it at home but I'm really uncomfortable (vain I guess) using it outdoors - can anyone out there using oxygen help me feel more comfortable about it.

 

any advise is dreatly appreciated

 

thanks

Roe

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  1. roepete

    need advise


    roepete

  2. roepete

    I really need advise on being comfortable using oxygen outside - I am really embarassed wearing the nosepiece

    please helpme feel better about using it - and to stop being so vain

    thanks


    roepete

  3. Ohana

    I am a bit self conscious in front of people but most times folks look because they are interested, curious but not unfriendly. I think it gets easier as our need increases and just forcing yourself to 'go public' repeatedly. I usually just smile at folks and they smile back because they are more comfy in my presence. Hope you can build up more confidence so you can get the most out of your vacation.


    Ohana

  4. sassymeto

    I think it is normal to be a bit self conscious about this, however think of what it does to you if you don't wear it. This saves you from creating heart issues, kidney issues etc... and Lord knows we have enough with the COPD. I had a problem in the beginning, then I just figured I could be seen like this or stay home and rot, or go out and ruin my other organs and soon end up in a wheel chair with oxygen so I took the easy way out and used oxygen, I'm chicken. If you think someone is staring at you smile, wave, nod your head whatever, but I do think you will find people, if they are/or do look, it is they are mor curious than anything.

    I would love to hear about your Lung Volume Reduction Surgery, as I also had it done and like to hear from others to see how they get along then and now.

    Have a fantanstic day.


    sassymeto

  5. AZGram

    I have found that .... when someone is starring at me, I stare right back at them, sizing them up and down, until they are more uncomfortable than I. I guarantee, they think twice the next time! Then I smile and go on my way.....


    AZGram

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