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ShanDar 
5:59pm, June 26, 2009
I'm so blessed I've found D.S. I've been so frustrated and felt alone with Myelodysplasia, and needing to know what others go through.
For instance, what is the age range for Myelo patients? Is anyone on special diets, medications, treatments?
So far, my oncologist sees me every 3-4 mos. He does a blood draw for CBC's to check my platelet level which is now 62,000 down from the last check at 107,000. Does anyone else experience this too?
I feel chronically fatigued, mild overall pain and anxious. I get an idea in my head, like I HAVE TO be at the library at a certain time on a certain day. I won't relax about it and I drive my family nuts until I get to the library. In my head, I know that the world won't end if I don't get there at the time I set but I can't seem to settle myself down. My family tries to help me, which sometimes works, more often than not, I drive them nutty with my senseless prodding for us to go. I'm even worse when it comes to an appointment. If I'm not at the Dr.'s office 15-30 minutes ahead of the time of the appointment I can't stand it! It makes me so nervous I shake so hard my family sees the shaking.
I'm currently taking prednisone, citalopram, albuterol and spiriva. I'm thinking the citalopram needs to be increased. 
