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About Me
Friedalina
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About Me
I have chronic low back pain caused by Ehlers-Danlos, hypermobility type. My body can't make collagen properly so all of my connective tissue is weak, including the ligaments that are supposed to support my joints and spine. My joints flex too much and I will eventually get widespread osteoarthritis, but I'll cross that bridge when I come to it.
I have chronic low back pain caused by Ehlers-Danlos, hypermobility type. My body can't make collagen properly so all of my connective tissue is weak, including the ligaments that are supposed to support my joints and spine. My joints flex too much and I will eventually get widespread osteoarthritis, but I'll cross that bridge when I come to it.
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Interests
reading, movies, music - I am a Red Hot Chili Peppers fanatic and a Lord of the Rings geek
reading, movies, music - I am a Red Hot Chili Peppers fanatic and a Lord of the Rings geek
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Journal
Friedalina hasn’t written any journal entries yet. -
Hugbook
Hug
Hey there - hope you are doing ok!
Hug
Random act of kindness...PASS IT ON!
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Good Luck
hope you have a pain free ( or at least pain light night!)
Moment of Peace
hope u feel better
Get Well Soon!
Always nice to hear from you also. I really hope your back feels better very soon. I'll be thinking of you. I'll be here for you. Take care.
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Photos
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Support Groups
Close Chronic Pain
I have Ehlers-Danlos syndrome which causes my chronic low back pain.
Treatments
- Heat Working / Worked
- helps the pain but only while I'm on it
- Nerve Blocks Working / Worked
- 1st helped a little: next 2 didn't help at all
- Oxycodone Working / Worked
- works well with few side effects
- Physical Therapy Not Working
- made my back pain much much worse...NEVER EVER LET SOMEONE DO "ROLFING" ON YOU!!!
- TENS Working / Worked
- worked great but I developed a severe allergy to the adhesive on the electrode pads
- Baclofen Working / Worked
- helps a little with the muscle spasms in my back
