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NetJet 
10:13pm, July 6, 2009
It seems so unbelievable that I will have health insurance after waiting 27 months for it. The waiting process has been long and rocky. I have to find a new doctor who specializes in CFS. The awesome one I had retired and moved on. This was all but a shock to me. Dr Minks was such a super support system for me. I miss him already.
As I search for someone that treats CFS in my area I am coming up with 0 zero. The closest one is in North Carolina another state away. I know I have to keep looking and fishing to find what I need. My health issues have grown - I not only have the Chronic Epstein Barr Virus, CFS, migraines, fibromyagia but now my nuerological system is going haywire. I am lost as which direction to go in.
First I will see a GP and get consults. I need a SPECT scan and MRI immediately. Dr Minks ordered them a year ago. I made an appointment with a neurologist in my area. I cant wait to see his face when I tell him I have CFS and Fib. The Chronic EBV will be the funnier look of astonishment I get from him. Lets face it most neurologists dont understand the disease. Maybe I will get lucky and hit the jackpot. Perhaps this nuerologist is knowledgable of CFS and believes in it also. I can only hope so - I am not into doctor shopping.
Patience has been a virtue in all this. Dr Minks suspected I have MS but without a MRI wouldnt diagnose me. How do you go into a docs office and say hey I couldnt afford the test without any insurance so I walked around sick for basically 2 1/2 years without any further tests. Thank God I got all the ones in the beginning and a diagnosis from a great doc.
Is it asking too much to just simply wanta get this stuff done, the tests, so that I can atleast have the peace of knowing what is going on. I have been waiting long enough as it is. I will be persistant, assertive and confident as I approach the medical docs I see. I want answers, I want to know why I am having all these symptoms and I am tired of waiting.
Comments
Oh so hear you girl...I know what you mean for me no Doc for over 3 years...now i have one.. For you I am praying this one will be ok and that you will find a good doc..I hav also got worse with symptoms...
So glad u have the insurance now....
No not asking too much to be treated and tested and being proactive....its your human right..
Luvvles from Julie
julesd
Thanks to the state of health insurance in our country, a lot of us walk around chronically sick until we end up in ERs, or worse. I'm SO glad you got insurance! God tells us to be patient, and this will BE SUCH A HELP! The MRI should tell you whether or not you have MS, but my friend who has it says it's tricky; sometimes there are lesions and sometimes not, so I hope they can figure you out. I have EBV too, and CMV (cytomegalovirus, sp? -- it attacks the liver. Oh boy. Good thing I don't drink!)I'm just SO SO glad you can get the tests, and hope you find a doc who understands. My first docs did, but I've had to educate a few. Our neurologists don't seem to stay for more than a year, and they all have foreign accents (who wants to practice in ND?!) so I finally quit seeing them and see a great pain mgmt doc who's from the state but had a great education, and my family practice doc (my "gatekeeper") has several CFS patients so he knows more than most -- still, sometimes we have to educate them, tactfully if possible! I hope you not only get tests, but something that can help you have many many more good days, and get rid of some of those awful migraines (I know them too well too!) Hoping you have a great week!
LeeS58
Thank God you got health insurance. Seeing the right doctor coming your way to help you.
Iloveflowers
It will make such a difference.Have you researched holistic docs as well.We only have one in my area but he is holistic,worth a try.I'm so glad to see your smiling face....you deserve it Dannette!Love you,Jen
IamJen