Journal

Been working extra hours monday to thursday this week as had to renew paediatric 1st aid certificate, so on top of my normal 12 1/2 hour working week I had to do extra 12 hours training.  Doesnt sound to bad but my shft finished at 12:30 on Mon and Wed and at 12:25 tue and Thursday then I had to get from one end of Middlesbrough to the other to start training at 1p.m.  Therefore I had no lunch break so no time to eat lunch or have a nap.......I'm exhausted.  The course finished an hour early today so thought I'd rush home and have an hour kip before I had to collect my youngest from the childminder.  As soon as I closed my eyes...body paralasis and vivid dreams.  Great (not).

Managed to bring myself out of this to sit like a zombie to afraid to go back to sleep for fear of another attack or that I now felt that shattered I might not wake up in time to collect my youngest.

I have accepted that I will never work full time again but did think I might increase my hours a little when my youngest starts full time school in January.  After working just 24 1/2 hours this week I'm not sure that I will be able to manage much more than I work now...I feel absolutely exhausted, have an headache and just feel out of it. 

Was planning a nice long bath tonght but not so sure now....i'll do my typical falling asleep in the bath as soon as I relax and be that exhausted when I come round I'll just climb out and into bed, I suppose I could try the shower.

Anyway thats my grumble today.  Hopefully feel better tomorrow as my 1st Aid course completed and I passed.  Back to normal shifts today.

Ho yeah and thought I'd mention that when they covered epelepsy, fits and convultions cataplexy was not mentioned.   I had to speak up and let them know that  
cataplexy does exist. 

I just wanted to write and tell people I had the pleasure of meeting a new friend who is a regular visitor to Daily Strength yesterday.  I find this person a very stong and determined person I want her to know that I adire her for her strength, courage and fighting spirit. 

Anyway we had a good 2 and half hours of chatting and getting to know each other, drinking strong coffee that was made by someone who knew exactly how strong to make it (dont you just hate it when someone gives you dishwater).  Next time I promise to take advantage of the offer of ice-cream, in fact I think I might even take some chocolate cake along.

It was great to find out that some of the more unusual symtoms I suffer and dont normally mention are not unusual and very normal....at least to those of us with N.   

So thank you again, I really enjoyed our get together and looking forward to doing it again.

We have arranged a meeting on 14th August 2009 in our local area and invited some of our friends from this group, I only wish all of you lived close by so you could all attend, not only to meet face to face and talk about our symtoms and offer help/advise and support to each other but also to discuss anything and everything and to be there to help make each other laugh when we need it  (except me as thats my c trigger) and to hug each other when we cry.

Well I've just got back from a 4 day break at Haggerston Castle with the family and can I say what a fantastic few days we had.  The caravan was great, the shows fantastic and the activities brilliant.  I thoroughly enjoyed ever moment, however.........I'm exhausted.

I napped on day 2 and 3 for a few hours and slept throught the entire 2 hour journey home much to the annoyance to my hubby since I was meant to be chief navigator (lol since I cant even find my way around my home town or stay awake for more than 10).

 mins as a passenger in any form of transport).

Anyway, woke up today, my 1st full day home and the hubby suggested a trip to Newcastle shopping and offered to get me some new designer shoes and take me to my favourite resturant at the quey side.  Unfortunately I had to turn him down in favour of a few hours in bed catching up and recovering.  What has happened to this girl!!!!!!