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  • About Me

    Image of jgray37000

    jgray37000

    Female, 64
    Ransomville, NY, USA
    Member since June 14

    • About Me

      ret. paramedic, love gardening, animals, the countryside

      ret. paramedic, love gardening, animals, the countryside

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  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      fibromyalgia, severe cervical and lumbar stenosis and disk disease, OA, now develoving MS

      Treatments

      Neurontin Not Working
      wasn't effective
      Physical Therapy Somewhat Helpful
      "puts out fires", but then they start up again
      Baclofen Working / Worked
      a miracle, but seems to have pronounced side-effects. Only on it 2 months, and have nausea and NEW joint pains, with old joint pains gone.
      Arthrotec Working / Worked
      Been on it for years, since Vioxx went off the market. Celebrex doesn't work for me.
      Carisoprodol Working / Worked
      Good, but not as good as Baclofen for morning stiffness and flare-ups
      Hydrocodone Working / Worked
      Still somewhat effective for especially painful days
    • Close Arthritis

      Treatments

      Arthrotec Working / Worked
      Have taken this since Vioxx went off the market.
      Glucosamine/Chondroitin Not Working
      Took this for
      Ibuprofen Somewhat Helpful
      Hard on my stomach
      MSM Somewhat Helpful
      But not medically proven to be safe, so I stopped
      Naproxen Working / Worked
      works, but has to be taken more often than Arthrotec
      Pain Management Clinic Not Working
      I find these are mostly set up to prevent malingering drug-seekers from getting pain meds they don't need, and they don't really help those of us who NEED pain control
      Surgery, Knee Replacement Somewhat Helpful
      Actually a partial replacement...and now it's almost as painful as before the surgery
      Tylenol Not Working
      Doesn't work on my level of pain
      Trazodone Working / Worked
      At bedtime. Greatly reduced morning stiffness and migraines from cervical arthritis
      Carisoprodol Working / Worked
      Helped with muscle spasms in back from lumbar arthritis.
      Fish Oil Working / Worked
      6000 mg Pharmex Fish Oil 1T
    • Open Back Pain

      I have been on disability with severe Lumbar stenosis with facet joint disease, cupping and disk dieease for 14 years

      Treatments

      Acupuncture Not Working
      Never worked, but, sice these practitioners aren't regulated, you don't really know if that's because acupuncture doesn't work or if their the technique was bad. I DO know that "Sea Bends" completely cured my car-sickness, and that's acu-PRESSURE, so there's certainly something to the idea!
      Aqua Therapy Working / Worked
      This has been very helpful in reducing back spasms before they get a foothold.
      Bedrest Not Working
      Worst thing you can do for back pain, unless you're hospitalized and need IV meds, or something.
      Carisoprodol Working / Worked
      Very effective. On;y Baclofen was better, and it carried a boatload of side-effects.
      Chiropractic Adjustment Not Working
      This was never any more effective than a good massage. The difference was that my insurance paid for it and not for massage. with both, the pain returned in a few days.
      Darvon Somewhat Helpful
      Epidural Injection Not Working
      Didn't work in my back (epidural) but DID work in my thumb arthritis and my knee...so who knows.
      Flexeril Working / Worked
      But not as effective as SOMA. Made me very sleepy when i first started it, but after several years, had no side effects.
      Heat Working / Worked
      Actually, I use those ThermaCare Heatwraps, because they stick on and you can walk around with them and they last 6 to 8 hours. They're wonderful for relieving spasms.
      Hydrocodone Working / Worked
      Now up to Lortab 10/500, asn sometimes need 1 1/2 for pain control. Lortabs actually reduce your pain tolerance, so they are a double-edged sword. The problem is that they are what doctors feel "safe" prescribing, so you get them for everything...dental, post-surgery, arthritis pain, etc.
      Ibuprofen Working / Worked
      OK...but hard on the stomach
      Memory Foam Mattress Working / Worked
      Got this on an adjustable bed and the combination means that i can always find a completely comfortable position. Yes it was expensive...but you spend a third of your life in bed and how you sleep affects the whole day! So I saved up...and its well worth it!
      Physical Therapy Working / Worked
      Works, but obviously cannot correct the underlying problem of increasing arthritis, etc. So, you have to go back over and over.
      Pilates Working / Worked
      This has been tha single most helpful thing for my severe back problems. My lack of core muscle strength probably CAUSED them to begin with and strengthening them has been miraculous in relieving pain soreness and stiffness. And its surprising how long that core strenght stays with you. I hurt my shoulder needing surgery and couldnt do pilates for over a year and my back only started to hurt again after about 14 months. Cant wait to start again!
    • Open Fibromyalgia

      Treatments

      Aqua Therapy Working / Worked
      amazing for preventing the generalized musclejoint pain after an active day
      Trazodone Working / Worked
      Very helpful for getting restful sleep and minimizing headaches
      Lexapro Working / Worked
      Seems to help with Fibro fog
      Fish Oil Working / Worked
      6000mg Pharmax Fish oil 1T is amazing for mental clarity and general overall lack of pain
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