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StayySayyy 
8:49pm, November 8, 2009
It really upsets me and get my angry how people treat others on here. Two wrongs don't make a right!!! I really wonder sometimes why I even bother trying to help people on here or even bother being a member still. I have gone from extreme constant pain to many pain free days in a row... I give all credit to the "enemy" of this site ICish aka IC anonymous aka Gloria aka a REALLY good friend of mine. I keep my opinions to myself and I keep on watching people torture them selves by looking for the “quick fix”. I have come to realize that there is NO cure for this horrible disease and there is more to it than the bladder, diet, wearing loose clothes, taking a million different pills and doing who knows what for treatments. Ask yourself this question… Taking all the medication you take, all the treatments you do and following the “IC diet”… are you still in pain? If so why aren’t you REALLY trying to help yourself?
If you want to commit and work on managing your IC you know where to go.
God bless,
Stacey
Comments
Hello everyone,
I would like to first start off by saying I hope no one takes this wrong in any way shape or form and I am not placing judgment or pushing anything on anyone. I would like to share my story and what I have been doing to manage my IC, CPP and Vulvodynia pain. I haven't had all of this very long, I would say about 9 or 10 months so I can't and wont try to relate to those of you who have had this much longer. To manage my pain I first gave myself permission to except I have a few things that have no cure and gave it up to the Lord to guide me in the right direction. After excepting what I have I took it upon myself to put trust in someone that has helped me so much since that day. I personally feel that this horrible diseases we all have definitely has a mind body connect because once I rid myself of bad foods, started doing self help techniques, stayed away from medication and relaxed I seem to experience pain due to stress or lack of sleep.
I know everyone has different underlying problems that can be extremely hard on its own and having to add on IC and other pelvic pain disorders. It take commitment and hard work to figure out what is best for each and everyone of us and we can not give up on each other.
I wish you all the best of luck and God bless!
Stacey
Comments
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I think you are right on about the mind-body connection, and that God does lead us to better health when we ask Him. I was in a wheel chair and crippled by arthritis, asthma and other things, on 22 meds 5 years ago. Now I am healthy, exercise, go to school, help in my church, and play flute. God led me on this journey out of sickness. I know I won't live forever, but my hope is in God, and I would like to live this life able to contribute to my friends, family, and society in a positive way. I'm glad you are starting to feel better.
What you eat is definitely part of the plan for recovery from any illness!
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Stacey ~ I admire your faith and thank you for sharing it. I, too, am learning that God has plans for us, even in these conditions. He teaches me humility - and dependence on Him. Living day to day - kind of like Moses and the dependence he learned in the wilderness. I trust. Nice to meet you here:)
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When I feel misunderstood, I now pray "God, You know." When I hurt so much I can't bear it, I pray "God, heal me."
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you said it!!!
bennyb
I understand people's frustration and anger. I believe that someone can state what has worked for them but shouldn't set themselves up as some kind of expert. When it comes to expert opinions, I rely on my doctor who has been wonderful through this whole process. Thanks to her diagnosis and treatment, I've been pain free for almost 2 1/2 years. I'm not about to throw away my medication because someone on this site has set themselves up as an expert and says I should.
LWowk
I'm so sorry to say that the issue remains when someone sounds so judgmental of other posts...when we're all just trying to find the best way to take care of ourselves...sometimes following doctor's advice....and having personal messages sent to us for the purpose of "correcting" because of "caring". It does not come across positively. And its been done so much, that it begins to look like stalking - I worry for the younger persons here who are looking for a mentor - and the absolutes that are being given them -- when there is no absolute!
This is to be a safe place - and every post made should not be met with corrections by one person assuming authority. That's the issue. If that could be softened, it wouldn't be met with such resistance. Hope this helps.
SisterKathy
All I would like to say is... Thank you so much Gloria for being my helping hand and talking to me on the phone for hours when I'm in pain or just need someone to talk to.. Thank you for getting me to do the exercises, eat healthy and live as much of a stress free like as I can and Thank you SisterKathy and LWowk for proving my point. I am not going to go on and continue fighting I simple stated my opinion and feeling in MY Journal and once again people become defensive and target. God bless you all and I hope for some relief and/or remission to come your way soon.
StayySayyy
I'm sorry, Stacey. It is your journal. It sounded like you asked a question and wanted an answer.
If you ever want more of the info that causes me not to trust her as you do, just ask. I kept copies. But I am thankful you are feeling better. And I am thankful for you.
SisterKathy