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Sticksrrll 
8:26pm, September 27, 2009
I've been away for a few days. The combination of pain meds for Pancratitis and my normal HE lethargy has had me fighting to stay out of the bed. New apartment is a mess which is unlike me but most of the time I just look at it shrug and go to bed.
I've identified some of my frustration as a fight between my spirit and my physical condition in particular the my clouded HE mind. I am used to being able to meditate, clearing my mind of the noise and finding peace at most anytime. Now I struggle to focus on doing stuff including reaching out to people here at DS or local friends.
Hmm, lost my thought. If you find it let me know and I'll finish. Good bye for now. Jim
Comments
I find it very discouraging to be unable to do things, trying to remember to set priorities & adjust them. Acceptance is tuff. We need our rest to taker care of ourselves.
ptriss
Good morning Jim, sorry to hear about your HE probs. I took a few minutes to research HE and it was enlightening. It may be difficult for you to understand right now. It was hard for me `cause I need another cup of coffee. Simply put, ammonia build-up is the main suspect but there are other factors that could be involved that can overlap the cause of HE. In all studies I read the conditions are reversible. Commonly lactulose and minimum animal protein intake are prescribed however there are numerous other treatments that may help. I suggest that you find a liver specialist who is aware of the alternate/co-treatments. You have no need to suffer this dysfunction forever. If you need help finding a suitable doctor in your area I would be happy to make some phone calls for you. I suspect your doctor would have a referral for you. Let me know how it goes.........................Jeff
JBOB11
Thanks JBob. I've been taking the lactulose and Xifaxan (antibiotic) since early May. It may be finally working but I still get spells or attacks. The funny part is that my hepatologist/transplant Dr says he doesn't even look at ammonia anymore because it is only one of many toxins in blood that can cause HE. He looks for hand flapping, my communication, and quality of life symptoms. It's just my most prevalent symptom since it affects me in such a way that I can't ignore, all the others are just kind of there quietly taking their toll.
It is what it is and I do the best I can. Thanks for your support.
Sticksrrll