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  • About Me

    Image of JCTomes

    JCTomes

    Female, 53, Married
    Richmond, VA, USA
    Member since June 2

    • About Me

      Chronic pain from Brain Tumor, headaches & nerve pain

      Chronic pain from Brain Tumor, headaches & nerve pain

    • Interests

      Jewelry Making, sewing, all types of crafts

      Jewelry Making, sewing, all types of crafts

  • Recent Activity

    November 11

    April 6

  • Journal

    • Prayers answered

      Mood October 9, 2009 12:48am

      Last week was one of the most difficult ones I have ever had. I met with the "Specialist" and was told to take... get this, EXCERDIN for my …

    • End of the line

      Mood October 2, 2009 8:18am

      I haven't been online for almost a week, I am at home and my condition is worse than ever. I am seeing the neurosurgeon today, and demanding that …
    • I have had all I can take

      Mood September 22, 2009 11:38am

      I made a decision last night. I want them to do the surgery, no matter what the risks are. i simply can't take any more. I don't care that my …

    • I found my back bone... thought it was lost!

      Mood September 18, 2009 10:35am

      I have been fighting with my doctors for months. I felt like I was playing a game of musical chairs... Go to this one, no he can't,won't …

    • Back to the drawing board

      Mood September 15, 2009 1:53pm

      Here I go again. I have tried for 2 days to reach the "New" Neurosurgeon, and not 1 call. I ended up in the ER Sunday because the pain was …

    Read Journal

  • Hugbook

    Give JCTomes a hug



    • Hug

      From Dulcinea2 November 15

      Dear JC,
      Wishing you love and blessings. Hope you are feeling better.
      Love,
      Dulcinea2

    • Hug

      From lgdennen November 14

      Are you doing ok? I just wanted to let you know I am going to a pain clinic every other week--they are giving me an thoracic? edpidural to help me with my liver pain (stomach pain)--I just wanted to throw that out there--it has helped me so much...it has almost been two weeks and still no pain--no joke. I am just taking pain pills to cut them down so I won't have any kind of a withdrawal. I hope you are doing ok, I know you were on a patch but for the life of me I cannot remember the details of it...Is it working for you? Hope so. Lisa

    • Hug

      From hollidayddd November 11

      are you still on the patch? I am headed for my pain doc today and I am considering it since I am tired of taking so many pills :o{

    • Hug

      From LadyIris October 27

      Just wanted to give you a BIG HUG after reading your post on my thread. I pray you get some much needed relief.

    • Funny Face

      From hollidayddd October 27

      You mean you miss me fussing at you! I just read your post about the patch. It sounds like it is too strong perhaps if it is making you sick. But I am not an expert on them and I am sorry it is not working right :o{ We just want you feeling right and well - Dog gone it ! You have been through so much and if you could just get to a stable point of being able to maintain the pain. I feel like a pill popper with all of the pills I take but they do get the work done. I wake up in the worst pain and I can't take the pills until after I drop my girls off from school. But I am glad you do finally have a doc who is giving you something strong enough but I think it was something too strong! But are you in Pain? I hope not. I have had the wrong procedures too that have caused more nerve damage so again I am sorry that happened to you. These Docs! Sometimes.... You just want to give them some "Pressure" of their own! - Joking of course :o) Have a great day!

    Read Hugbook

  • Goals

    Progress

    10 %

    Goal End Date is Dec 31, 09 37 more days.
  • Support Groups

    • Close Chronic Pain

      I have chronic pain from a brain tumor and Trigeminal Neuralgia

      Treatments

      Hydrocodone Working / Worked
      It works when the doctor will give it to me!
      Neurontin Not Working
      It worked for a while, but now the pain is worse than ever
    • Close Trigeminal Neuralgia

      Brain Tumor & Trigeminal Neuralgia for almost 2 years

      Treatments

      Gamma Knife Working / Worked
      At this point nothing is helping. My physician just changed my meds. Hope it helps. I was taling Neurotin but it no longer works
  • Friends


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